So glad to hear that things are going well for Valery and for the family, we miss you and love you all lots. Can't wait to see all of you in like 12 days!!! YAY!!
I just wanted to let you know that Bryson had the mmr and was fine with it. He is totally caught up on all his shots and there was no problem. We have been on the prograf for a week now and labs were good but still waiting on the level to come back. Our troopers our such little fighters:):) I'm happy to hear about Val's teeth coming in. Bryson has all his but we can finally see more of them with his gums going down. YAYYY:):)
Hugs, Kim Bryan Bryson (and soon to come Tyler:):)
Happiness is... knowing that Valery is doing so well! Her website was my inspiration for Piper's when we first got started with cota. And here we are now, how long since Val's transplant?! It's seems like just yesterday that I was waiting along with you. Amazing how quickly how time flies! Please know that you are all in my thoughts and prayers often, and give Val a great big hug for me!
Mark Walnicki
(webmaster for Piper!)
I am so happy that you are walking and getting more teeth!!! Yay You! I can't wait to see you in a couple of weeks, you are going to be the pretiest flower girl ever!!! I love you.
I just want to tell everyone how wonderful it is to see Val walking, yes, WALKING all over my home!! She looks so adorable, and she is having a great time every single minute!! I just love my little gal!!! I can't wait for her Wisconsin grandparents to see her walk next month! I know you guys are looking forward to seeing the gang, aren't you??? Keep praying everyone!
yay for teeth and walking!! val, you are such a strong girl!
I am so happy to hear she is doing so good. My daughter is the one that also had Biliary atresia. I know of the swollen gums as my daughters gums were huge. We are post transplant 2 yrs and 4 months and doing wonderful. This first yr is the hardest but after that its WONDERFUL. I am always checking on her. Please let me know if you ever want to talk its nice talking to people who went through the same as I have.
I'm very happy to hear that things are becoming more stable for all of you. I'm also glad to hear that Valery's gums are receeding and her teeth are coming through, I can't wait til she takes a big bite on Daddy's nose with those chompers...... Lol...... You guys take care and stay strong =) Have a peaceful 4th of July weekend.
Just letting you all know I am thinking about you and keeping you in my prayers. It's great to hear that with the Prograf Val is already showing signs of receding gums!! Kisses and hugs to all of you. I love you and miss you all lots.
So glad you are back home Valery. Hope they get the new med dosage figured out quickly. Big hugs and kisses
I am glad that you all are at home now. I thought about visiting you all at the hospital on Thursday and even bringing some Krispy Kreme doughnuts but didn't know if there were any restrictions. But if you still are up for the doughnuts now that you are home give me an e-mail. I would love to visit!
I'm sorry to hear about the rejection. I'm glad it seems like it was easily treated. I know it had to be crazy with her being more aware and mobil at the hospital. That is one of my fears along with rejection. Did you see Dr. A at all while you were there? If so how did that go? Well, we just got back from Chi town. They also switched Bryson to Prograf due to his gums. Lets pray for eachother that allgoes well with the switch. Take care:)
Hugs, Kim Bryan and Bryson
I haven't been to LF in a few days!! I can't believe I missed out on this chance to pray for you guys. I am sorry she is rejecting, happy she is coming through it okay, and worried just the same as you for the switch to Prograf...Argh! Hating the fear!
Lots of love, kissed and hugs to you, Chris and Valerie.
Treyton's Mama from LF
www.cotafortreytonm.com
I know this is extremely hard for your family. We are sending up many prayers for you guys!! I'm thankful she has a mommy who can stay on top of her care! May you be blessed with gettng to go home tomorrow!!!
Goodness! That girl has gotten HUGE and look at the hair!!! She is sooo precious! We are praying for Val as always and glad to hear that its only "mild" and fixable!
Big hugs
Pam and Marissa
I am so sorry to hear that you are all back in the hospital. It is very rough to be there. Trust me, I feel your pain. Valery will continue to be in my prayers and I know everything will be fine.
Val is in our prayers and in our hearts. Hurry home lil princess!!!!
stay strong just another small bump in the road shell do fine by the grace of God. praying for Val and the family
I got really encouraged to see that Val's bm's have returned to normal. We never thought we would get excited over poopy diapers did we until we had sick kids.
It's good you and Chris know what to look for. It's always good to be on the cautious side of things but not to think the worst and to wait on the results from our doctors. You and Chris are such good parents to all of your kids and I applaud you for spending lots of time with them. I have seen so many parents put their careers and other things ahead of their families.
I know Val is going to be just fine.