Continuing to send prayers. Hope all is well!
Wishing you a wonderful holiday season and a very healthy New Year!
XOXO,
Ana and Savvy
www.CotaForSavannahA.com
Hi Sweetheart,
Just had to stop by and see how you are doing! You are an amazing little girl and we are so happy that you are doing so well!
Sending you big hugs!!!
Always in our hearts,
Ana and Savannah
www.CotaForSavannahA.com
Still sending many prayers. Glad things are going so well!
Just checking in...I'm glad things are well! Love the new photos of her. She is so beautiful!
Just read the new updates, So happy she is doing good!
Just dropping in to see how things are going. No news is good news!!!
You had Luke on my birthday!!! Congrats and many prayers to all of you!!
Wow really!? Cinco De Mayo birthdays :) thank you!
She is so darn beautiful! Valery is growing like a weed and we love it!
Sending her big hugs and kisses!
XOXO,
Ana and Savannah (Warrior Princess!)
Wow how much she has grown since before transplant. Look at her hair she matches my husbands hair in color haha. She looks very good and thank god for the gift of life =)
Valery is just beautiful!! Strong and brave little lady!! My 2 yr old was scared of the Easter bunny. LOL I love to read your updates and see pictures. Thanks tons!!
I am so happy that Valery has made it sooo far! She truly is an amazing little girl. It has really been something to see how God has worked in her life in such a short amount of time and what a miracle he performed!
Great job everyone! Val is healthy and growing!!!
Hi Valery this is the first time I have visited your cota site! I love the pictures. You look like your more than 25lbs. I think its those cute chubby cheeks! I'm glad your check up went good. Sending you hugs and kisses from Kansas!
Happy Birthday to you, Valery...I thank God every day that you are so healthy and happy and that we get to share these special occasions because of his great love...I love you Valery and I hope your 2nd birthday is a special as you are!!
Wow Val has grown like a weed! She is soo beautiful! Glad everything is going so well for you guys
Hugs
Pam and Marissa Rose
Thanks for the update, I always love to hear how my beautiful granddaughter is doing!! Glad to hear all of her labs were good, please keep us posted on her prograf. She is such a special little girl, it amazes me how happy she always is...what an inspiration to us all! Love you all lots
Where are the new Pictures of the Little One? Im sure she is growing like a weed now that she has a happy new liver. I hope all is well I check daily for updates and keep up on your stiry as well as many others.
Thanks for checking in on Val..I will add pictures eventually :)
I am so excited to see that Valery is doing well:) I am so glad that I had the opprotunity to meet her and the whole fmaily:) Congrats on the new baby:) Give Valery a kiss for me!
Wow so great to hear from you! Thank you for teaching Valery so much!
Wondeful news! Glad the labs are back to normal again and she can have a break from those nasty lab tests for awhile!!
Aww, the image of Valery grabbing her daddy's neck so tight makes me want to cry :( I am so glad that her labs were back to normal.
Love you all!
Val you're an amzazing strong little girl!!! Look how much you're growing up, way to fast. Can you believe in just a few months you're going to be a big sister to Luke??? WOW you make sure to keep those boys inline. HUGS
It was nice to hear from you in Piper's guestbook! Just read your latest journal and Piper has the same situation. Prograf too high. And we just had the broviac removed and now she has to get stuck again. Amazing what our kids have been through and how strong they are. A lesson, and blessing, to us all.
Wishing you all the best.
www.cotaforpiperw.com
Just wanted to stop by and send some loving! Valery you are growing up so fast!!! I love it!!!
Hugs beautiful girl!
Ana and Savannah (Warrior Princess...just like you!)
www.cotaforsavannaha.com
Dear Carly, I am so very thankful your little angel is growing and doing well!! Being a year posttransplant is really something to brag about. I keep you guys in my prayers as I know God is always working through Valery and watching over her. Comgratulations on the new baby soon to arrive in May! I know he too will be a blessing to your family! I hope and wish you all the best!
Best Wishes,
Debra Croxton
Hi
happy new Year and congradulations on your one year anniversy. Im glad to see that all is well stay blessed and keep jeremiah in your prayers. God Bless
Congrats on the new baby!!!! Valery will make a great big sister! God's peace.
Hey, Carly! Just wanted to say how absolutely tickled I am about Val. I've been following her story since before the transplant & even though I don't know her, she holds a special place in my heart. You all are always in my prayers. God continue to bless you & your family. =)
I love hearing about Valery! Congrads on the baby boy.
just checking in to see if you got any results in yet.
I am so glad to know that prayers do get answered. She is a beautiful little girl. I shall pray that she is not ill with anything, and that she is as healthy as ever. God Bless you Little Angel, her family and to all that have given her even more hope. Merry Christmas Valery.
I am asking for help from everyone to please pray that Val is not developing EBV. I am praying for a simple virus. Matt, mammie and I cannot wait to see you all, we sure have missed you!!
I hope the trip went well. Hope to hear from you soon.
Drive safe. Let me know how thigns are when you are all settled.
Drive safe and Bring your Sled 6 to 12 inches of snow monday night into tue morning =)
This is the first time of me signing the guest book but I have been keeping up with Valery for over a year. I am thankful that you have shared Valery with so many people, she is a God giving miracle and it has been a blessing to watch. This Christmas is going to be so much fun for you and your family, watching her and her two big brothers. May God continue to bless you all.
Happy 1 year Valery!!!!!!!!!!!! You are an amazing little girl.
We just had a wonderful celebration with Valery and the family. It was such a great feeling to watch her play and see her eat her cake and ice cream (what she did not have all over and even in her hair!). She is such a very special little girl and there are no words to express the feelings in my heart of all the joy that has come to us from this very special gal! I am so proud to be her Nana and I am so happy to have shared all the bad and the good times. I thank God for all of his love and for holding Vals little hand, making her strong and happy!
And I am just as proud of Carly and Chris for their faith and trust in God and his miracle.
God crafted the entire thing and never stopped holding Vals little precious hand nor did he look away, for that I will always love Him and give praise to Him. Grandma Tina, I cannot even begin to express in words how I feel about you so generously giving of yourself to our little sweetie. Our family, and yours, will never forget the blessing you have given all of us.
I wish Valery and all of us a very happy anniversary. We will be doing this every year for a long, long time!!
Happy 1 year post transplant Baby Valery!!!! We are so proud of you and Mommy and Daddy =) You are a very special lil girl.... Love ya G'pa Randy
Happy 1 year Valery! I never had any doubts that this day would come, you are so precious and special and someday your mommy and daddy will tell you the story of all that you have been through in your short life and I pray when that day comes you will look to heaven and thank God for his many blessings in your life. I love you Valery.
WOOOT Way to go! Stay Strong and I will continue to always look for new updates as well as new pictures of Strong Valery
Happy 1 year!!! With MANY MANY more to come!!!
Happy One Year Transplant! You are a true miracle! God Bless you always!
Happy 1 year transplant! I have been watching your story for over a year now and can't believe how far you have come. God works in amazing ways! Blessings to you and your family and I can't wait to do this again next year! God's peace!
Congratulations, you did it Val! Keep up the good work! That was the biggest speed bump you will ever have to go over and you made it! Good job! You are amazing! I am so touched by your story and perseverance! Love and prayers continue!
2 MORE DAYS!!!
I remember a picture of Val with her feeding tube, yellow skin and her thanksgiving bib..amazing that that was 1 year ago!! So proud of you Val!
I've been following Valery's progress for almost a year now. It's fun to see photos. She is sooooo cute. Keep posting. (Wisconsin Grandma)
Still praying for your family! :) Happy Holidays!
Well, thats good its not her Vitamin D. Does the transplant team know about her level being high? What do they think?
it's just me again. I wanted to post a response to Shawndra from Wisconsin. Brayden has a CarePage at www.carepages.com. His page name is BraydenMichael. Let me know if you need more information to be able to log in. Thanks for asking! Brenda
Just wanted to say hello again. I've only posted once before... I am Brayden's mom in Wisconsin. Brayden celebrated his six-month post-transplant anniversary on November 9. We can't believe that he has made it six months with relatively few problems and none of them were liver-related. We find out today if he can come off one of his medications (Valgancyclovir)... keeping our fingers crossed! So glad to hear that Valery is doing well. Soon she will celebrate her 1-year anniversary, and we all know what a miracle that is!! God bless you and your family always. Brenda
This is great to hear! And wonderful about the medication! Praying for your Brayden!
Hey! Just a couple more days and it will be her one year! Wow, GOD is amazing! I am so happy to know that you got the gift of life Val! You are definitly an angel sent from above! Carly, I know that you are so very proud! She's adorable! I love that red hair and those chunky little cheeks! God Bless you all! Love, Hugs, and prayers continue from Lexington, South Carolina!
GOD is Amazing! We are very proud of our Val, and adore her hair and cheeks! Thanks Britt!
Val is in our prayers. Always glad to read she is doing so well. God Bless!
Thank You :)
Good thing you guys are coming to Wisconsin, we have lots of vitamin D here....... Lol...... Glad to hear things are well, see you soon.
Haha, your too funny :) We can't wait to see you!
You guys have been in my prayers and will continue to. Im so glad to hear that val is doing so good. Prayer works so well. Keep up the good work Val.
Thank you so much for the prayers and keeping up with Valery :)
Went to school with your husband. Been following her story for awhile now and check it everyday along with eme, savvy and aiden =)
Wow, thanks for following her story! And for following the other precious liver kids!
Latisha checking in to see how baby Val is doing. Wow a year already. I admire such a strong family.
We appreciate it :) Thank you, and it is truly amazing a year has gone by!
They should win an award for their costumes. Cutest thing ever!! Looking forward to hear her Vitamin D results. Happy 19 months!
Thanks Laura :) It was fun doing the Wizard of Oz. We cant wait to get the results..
Valery looks to cute in her Halloween costume. Wishing you and you family the best of luck!
www.cotaforgilliani.com
Thanks! I'll be sure to visit you daughter's site!
Enjoy your Halloween precious Valery! Always praying for you!
Thanks for all your prayers!
Wow! I can't believe its been almost a year! I will continue to pray for you! God Bless!
Oh my goodness!!! I havent came and checked in on you guys in a while and WOW!!! I cannot believe how big Val is getting!!! And that red hair! What a doll!! Keep going baby girl!
hugs
Pam and Marissa
Thanks for the post on our website! When we first joined COTA I was looking at the other campaigns and your daughter's was the first I saw. I was so amazed at how well she is doing and it has given me great hope! It is amazing how strong our sweet girls are. Currently Maggie is #1 on the Johns Hopkins transplant list so hopefully it will be soon. I practically jump every time the phone rings :-) Your family will be in our thoughts and prayers as well!
Take care-
Joi, Proud Mommy to Margaret "Maggie" Joi
2 more months and it will already be a year. Its amazing how far you have come Valery. You are one strong girl, and you make your mommy and daddy very proud. I can't wait to see you again!
Yes, only 2 more months! Thank u Laura :) We ARE truly so proud of her! We hope to see you soon!
Val you're such an beautiful little girl, I can not wait to meet you! 10 months seems like just yesterday but seems so long ago, you're doing wonderful :)
Response to Brenda Wisconsin-I also live in Stoughton, WI. Small world so happy to her Brayden is 5 months post. Do you have a myspace or website?
Thank you Shawndra! You are so right about 10 months..We can't wait to meet u too!
I am so happy to hear that she is doing so well! She is a BEAUTIFUL little angel and she is thriving! I am so glad that she is growing and able to talk and walk and everything now! I just love keeping up with this story! It's so inspirational!
We remember you! Thank you so much for the kind words! She really is doing well :)Thanks for keeping up with Val!
Hi! My husband Ron, son Brayden and I live in Stoughton Wisconsin. We first learned about Valery when she was on the Channel 15 news in Madison when she had her transplant. Brayden was on the waiting list for a new liver at that time. He is the same age as Valery (born April 16 2007). On April 28 2008, we were watching the 10:00pm Channel 15 news and saw a follow-up interview of your family. We were so happy to know that Valery was doing so well but at the same time wondered when Brayden would get his new liver. Believe it or not, about 10 minutes after your story aired, the phone rang, and it was the call we had been waiting for -- they had a donor for our son!!! Brayden received his transplant on April 29 2008. Unfortunately, that liver failed, and he had to have a second transplant on May 9 2008. The following day he had to have reconstructive surgery. It has been a long road, but today is his 5-month post-transplant #2 anniversary, and besides a few bumps in the road, he has been doing well. I check Valery's journal on a regular basis and am so happy that she is doing so well. She is a beautiful little girl, and she is always in our prayers. May God continue to bless all of you. Brenda
Wow, I am speechless! Thank you for contacting us! Thats an amazing story, and I will keep Brayden in my prayers!
Just wanted to let you and your mommy & daddy know that my church, and I are keeping you in our prayers! We pray you continue to have a smooth post transplant life and only 2 more months until your 1 Year Anniversary!!!
God Bless You Valery
My thoughts and prayers are with you always! I love you all very much and miss you tons.
Praying that precious Valery's ultrasound turns out fine! God is watching over you Valery :) God Bless you all!
Sending you hugs. You're all in my thoughts and prayers!!!!!!!
Valery,
I am so proud of all that you have accomplished in the past 9 months, you have come so far so fast and I am amazed by you! I love you more than you could ever know.
Carly and Chris,
You guys are an inspiration to me, all that you have been through together and you have remained strong and courageous throughout it all...You are such great parents and I love you both so much!
God bless you all...much love.
Wow, Tina, Thank you so much for that. Such lovely words coming from Valery's HERO! Can't wait to see you in December!
Wow the red hair..Just adorable. I love your updates on how she is doing and her pics on how beautiful she is growing.
Isn't the red hair awesome! :) Thank you for keeping up with Valery!
Valery, you are such an inspiration to us everyday precious girl! You have given us more than we could ever imagine. Things like strength, and courage. Thank you for the many things you have given us. We look foward to watching you grow, and becoming a woman.
Mommy & Daddy love you precious Valery.
God Bless you darling.
So glad all is going so well with Valery. Can't wait to see her in her dress - Treyton was in his Aunt's wedding on 8/16 and he looked darling in his tux. Prayers and hugs to all maybe we will get to meet in December.
So happy to hear how well everything is going. Luke is on prograf and we have had some problems keeping the level where we want it as well. It is great to know that Valery does not need therapy anymore. I can't wait for that day. I am always thinking about and praying for all of you. Take care and have a safe trip.
So glad to hear that things are going well for Valery and for the family, we miss you and love you all lots. Can't wait to see all of you in like 12 days!!! YAY!!
I just wanted to let you know that Bryson had the mmr and was fine with it. He is totally caught up on all his shots and there was no problem. We have been on the prograf for a week now and labs were good but still waiting on the level to come back. Our troopers our such little fighters:):) I'm happy to hear about Val's teeth coming in. Bryson has all his but we can finally see more of them with his gums going down. YAYYY:):)
Hugs, Kim Bryan Bryson (and soon to come Tyler:):)
Happiness is... knowing that Valery is doing so well! Her website was my inspiration for Piper's when we first got started with cota. And here we are now, how long since Val's transplant?! It's seems like just yesterday that I was waiting along with you. Amazing how quickly how time flies! Please know that you are all in my thoughts and prayers often, and give Val a great big hug for me!
Mark Walnicki
(webmaster for Piper!)
I am so happy that you are walking and getting more teeth!!! Yay You! I can't wait to see you in a couple of weeks, you are going to be the pretiest flower girl ever!!! I love you.
I just want to tell everyone how wonderful it is to see Val walking, yes, WALKING all over my home!! She looks so adorable, and she is having a great time every single minute!! I just love my little gal!!! I can't wait for her Wisconsin grandparents to see her walk next month! I know you guys are looking forward to seeing the gang, aren't you??? Keep praying everyone!
yay for teeth and walking!! val, you are such a strong girl!
I am so happy to hear she is doing so good. My daughter is the one that also had Biliary atresia. I know of the swollen gums as my daughters gums were huge. We are post transplant 2 yrs and 4 months and doing wonderful. This first yr is the hardest but after that its WONDERFUL. I am always checking on her. Please let me know if you ever want to talk its nice talking to people who went through the same as I have.
I'm very happy to hear that things are becoming more stable for all of you. I'm also glad to hear that Valery's gums are receeding and her teeth are coming through, I can't wait til she takes a big bite on Daddy's nose with those chompers...... Lol...... You guys take care and stay strong =) Have a peaceful 4th of July weekend.
Just letting you all know I am thinking about you and keeping you in my prayers. It's great to hear that with the Prograf Val is already showing signs of receding gums!! Kisses and hugs to all of you. I love you and miss you all lots.
So glad you are back home Valery. Hope they get the new med dosage figured out quickly. Big hugs and kisses
I am glad that you all are at home now. I thought about visiting you all at the hospital on Thursday and even bringing some Krispy Kreme doughnuts but didn't know if there were any restrictions. But if you still are up for the doughnuts now that you are home give me an e-mail. I would love to visit!
I'm sorry to hear about the rejection. I'm glad it seems like it was easily treated. I know it had to be crazy with her being more aware and mobil at the hospital. That is one of my fears along with rejection. Did you see Dr. A at all while you were there? If so how did that go? Well, we just got back from Chi town. They also switched Bryson to Prograf due to his gums. Lets pray for eachother that allgoes well with the switch. Take care:)
Hugs, Kim Bryan and Bryson
I haven't been to LF in a few days!! I can't believe I missed out on this chance to pray for you guys. I am sorry she is rejecting, happy she is coming through it okay, and worried just the same as you for the switch to Prograf...Argh! Hating the fear!
Lots of love, kissed and hugs to you, Chris and Valerie.
Treyton's Mama from LF
www.cotafortreytonm.com
I know this is extremely hard for your family. We are sending up many prayers for you guys!! I'm thankful she has a mommy who can stay on top of her care! May you be blessed with gettng to go home tomorrow!!!
Goodness! That girl has gotten HUGE and look at the hair!!! She is sooo precious! We are praying for Val as always and glad to hear that its only "mild" and fixable!
Big hugs
Pam and Marissa
I am so sorry to hear that you are all back in the hospital. It is very rough to be there. Trust me, I feel your pain. Valery will continue to be in my prayers and I know everything will be fine.
Val is in our prayers and in our hearts. Hurry home lil princess!!!!
stay strong just another small bump in the road shell do fine by the grace of God. praying for Val and the family
I got really encouraged to see that Val's bm's have returned to normal. We never thought we would get excited over poopy diapers did we until we had sick kids.
It's good you and Chris know what to look for. It's always good to be on the cautious side of things but not to think the worst and to wait on the results from our doctors. You and Chris are such good parents to all of your kids and I applaud you for spending lots of time with them. I have seen so many parents put their careers and other things ahead of their families.
I know Val is going to be just fine.
Lots of prayers to you! Stay strong and hopeful:)
U and your family r in my prayers!
keeping you in my prayers always. I know this has been a daily challenge for you, it's a commitment that God has in store for your family, he is with you through it all, praise him in this storm. he will give you the strenth you need. Valery is a trooper b/c she sees her parents are also. This too will pass and she will be back home before you know it. Her meds are the fine tuning of the entire transplant life. The doctors are smart and will continue to treat her to the best of their knowledge, keep them in our prayers also. Take care of yourself too Carly!! She needs you.
We're continuing to pray for you Valery! Hang in there cutie!
We are praying for you. I hope everything will get better soon.
I am praying for Valery and i hope that everything will be ok.I hope she feels better soon
Valery I'm praying for you! I hope the results of the biopsy are what we want to hear. I love and miss you all.
Val we love you...fight off whatever you have...this liver is too perfect to go wrong!
Praying it's nothing Carly and Chris. Always thinking of you guys!
Shannon www.cotafortreytonm.com
Valery,
You are such a strong girl. I know you will get through this in no time. We are all praying for you and can't wait to hear that you are all better. Tell you Mommy and Daddy we are praying for them too. God bless you and your whole family.
praying for valery always if you need a friend i am here for you i know it is hard when they are in the hospital but never forget GOD is on your side :)
Sending prayers and big hugs..........
Just letting you know that I still check one you little one and I'm praying that everything will be ok. Actually I know everything will be ok! God has brought you too far for anything bad to happen. Be strong as always and this too shall pass. Take care and MUCH love!
Thinking of your Family and Hope Val is ok. Stay Strong and Keep us Updated.
I hope everything is ok! I am checking every 5 minutes for updates!
Baby Val I haven't seen you in a while but have heard the news about what is going on with you. I hope that you stay strong and that this is only a small hurdle that you will sail over with ease. I love you and I am thinking about you always!
Stay strong and positive. Believe and trust God to handle everything.
I am praying for you guys. Hope everything goes well today. Stay Strong! I love you all!
My prayers are with all of you today. I love you all.
Saying extra long prayers today for Baby Val!!
Happy Birthday Carly Enjoy your day!!!!!!!!!
Valery, this is your mommy :) It's my birthday today, and I just want you to know my best birthday gift on this day is just having you here with us baby girl! Love you bunches miss priss!!
Valery, so hard to believe it has already been 6 months. You look amazing!!!!!!!!!!! Big hugs and kisses...........
Just wanted you to know that GOD answered my families prayers on May 13,2008 when er recieved a transplant pray for as as I continue for you. (COTA for Jermiah)
Carly Thank You for the updates we really appreciate them, I very glad to hear that Val is continuing to do awesome =) I was reading your update and I learned alot about the meds that I did not know especially the anti rejection meds. Please give baby girl and the boys a hug for me and Daddy too =) Stay Strong and Take care.
Just wanted to let you all know I am thinking about you and missing you lots. Carly, great job on the update (made me cry) I am so proud of you and how strong you are...I love you!!! Please give kisses and hugs to everyone.
What a milestone :) So happy to see how well everything is going. You're such a strong little girl! (((HUGS)))
Just thought I would stop by and say hi. I love the pictures you are so cute and those cheeks. Glad you doing good.
Just wanted to see how the little one is doing? Hope all is well and we see new pictures soon! hehe
Thank you very much for checking out our page. Im so happy that you got your new liver Val!!! You be strong little girl. You have conquered the biggest mountain in the world and now hold it in your hands. Its funny we as mothers look into our beautiful babies eyes and cry because we feel like we are helpless, maybe useless that we cant fix them. Yet, when they look back they couldnt smile any harder and feel so safe like they know we are their protectors. Lauren is eight months old today. Every month on the 19th I have a little party. I take every day as a blessing. Im sure you do to. Congrads again baby girl!!!
Happy Mother's Day!!!
XOXOXO,
Ana and Savannah (Warrior Princess!)
www.cotaforsavannaha.com
Just wanted you to knoeewthat i apperciated your beautiful message to my family and my son it was very encoraging to see. I hold your family in my prayers also and god bless you and keep you and Valery always.
(Cota for jerimiah.org)
Good Evening!
I just want to share a few things.
I heard from Vals mom, and the family is on their way into Chicago for the Celebrate Life Festival at Lincoln Park given by the Childrens Hosp of Chicago for the transplant kids. And even more important, Val gets to share this glorious celebration with her donor-angel-grandma! WooHoo!! YOu go Grandma Tina!! Is that not the very best???
I want to take a minute to mention another very important thing to you, organ donation. Please tell everyone you see every single day to be a donor and to tell their family that they are going to donate.
Last but not least, please pray for those precious little gals and guys that are waiting for their life saving organ and their families for whom time barely moves. Remember, we were all there at one time or another!
God bless them and us!!
Debra-Vals Nana
the party was at Navy Pier, and it was an AWESOME time! ~Vals Mommy
Looking forward to seeing you tomorrow. I will be praying for you all to have a safe trip. Love Ya's
Can't wait to see you on Tuesday....I have been waiting 3 LONG months to hold you and I will finally get to in a couple of days, I love you baby girl. Cya soon!
I am so excited that I am going to get to hold you and hug you in just a little over a week. I miss you and love you lots!!! Can't wait to see all of you.
im so glad that valery is 1 and she is doing so good.
HAPPY BIRTHDAY BABY GIRL =) Congrats on your first tooth =P
Happy 1st birthday!!! I can't believe how big you are getting. I can't wait to see you again. You are an amazing little girl with alot of strength. I miss you and everyone else. Hugs and kisses!
HaPpY bIrThDaY my precious little niece!!!!!!!!! I can't believe that you are ONE! You have gone through so much in your little one year and have proven to be such a little fighter. I love you and can't wait to spend MANY more birthdays with you! Love you, Aunt Nicole
Happy 1st Birthday Valery!! I can not believe how time flies yet it stood still at times.. You are a very strong lil girl. I can not wait to meet you!!!! (((HUGS)))
Happy First Birthday Valery!!! God is wonderful! There are great things in your future. Congrats to Mommy and Daddy!!! You are so strong! Thank you g'ma Tina-you are an angel!!
Happy 1st birthday Valery! I can't wait to see you and the rest of the family in a couple of weeks. Be prepared for lots of squeezing!! I love you lots and lots baby girl!
HAPPY BIRTHDAY VAL! You are truly amazing! Maybe one day Ill get to meet you in person =)I read all your updates and follow your progress!
What a beautiful gal you were yesterday at your first birthday celebration! I had such a wonderful time watching you and your antics!! We are so very proud of you and all the amazing things you are doing now! We thank our Father every single day for you! Happy First Birthday big girl! I love you very much!
Your thankful Nana!!!
I still follow your updates on Valery. I am so glad to hear she is doing so great! I looked at the pictures. She is so beautiful. I can really tell a major difference in her appearance now from the way she looked when I first saw her picture on Myspace. She looks so much healthier! She looked lovely in her Easter dress! Thank you for continuing to update us on Valery. I love witnessing these miracles! God is so good!
I am so happy to hear how well she is doing. :)
I swear every new picture I see of Miss Val she just gets cuter and cuter! What an encouragement to all of the freshly transplanted kiddo's she is! We continue to pray that everything stays "normal" for a very long time!
Big Hugs
Pam
hope you had a great holiday... please e-mail me I had a few questions . thanks
Ajmac@gmail.com
Happy Easter!!!!
Always in our hearts,
Ana and Savvy (Warrior Princess!)
Happy Easter Huttner Family =) Tell the kids that I said "Hi" and tell Carly's family that I wish them a Happy Easter =)
I absolutely love the picture of you standing on the playset!!!! You are such a strong little girl and have come through so much, it is so amazing to see you crawling and standing. What a big girl you are becoming. I love you Valery! Give your brothers hugs and kisses from Grandma Tina
Crawling!!! Woooohooooooooo!!!! You are an amazing little Warrior Princess!
Always in our hearts,
Ana and Savannah (Warrior Princess!)
www.cotaforsavannaha.com
I'm so excited that Val is starting to crawl, that's great news! Thanks for all the pictures you guys have been sending us, the kids seem very happy and are growing so fast. Take care
I am soooo HAPPY!!! Val is doing so well..... You're such an inspiration... (((HUGS)))
Valery you are absolutely breathtaking, every time I see new pictures of you, you are more and more beautiful. I am so excited to see you doing all the things you are doing. I love you baby girl.
Peace, Brothers!
Wow! It is truly a miracle from the Lord how far you have come. Though this has all been really hard for you and your family, I know it has brought all of you closer together. I pray everyday that you continue to do well and I am so thankful that God has placed His hand on you and healed you and performed such a wonderful miracle. It is amazing how we are blessed and to see what can happen when you put all your trust in the Lord!
Wow, Valery!!!! I cant take my eyes off of your new pictures. What a nice nice nice change. Look at all that HAIR you are getting :) It's so nice to say that, too!!!!
I love following your story. Stay strong, stay so sweet....
Shelly
Valery, sounds like you are doing marvelous. Stay strong and keep pushing on. Hope to meet you in April Big hugs and kisses
Oh my I can not believe how big Valery is getting. She is soo adorable. I miss all of you soo much! I love you and miss you all very much!
I am so happy to see Valery is still doing great! She is so strong...God's up to something! Keep hanging in there Val :)
I JUST WANT TO SAY THAT I HAVE BEEN FOLLOWING YOUR STORY AND I CAN NOT GET OVER HOW MUCH SHE HAS CHANGED. SHE LOOKS WONDERFUL!!!! I JUST LOVE THE RED HAIR THAT SHE HAS. I CAN SEE THE HAPPINESS IN HER EYES AND HER BROTHERS.
GOD BLESS GMA!!!!! WITH OUT HERE VALERY WOULD NOT BE WHERE SHE IS NOW!!
MY THOUGHTS AND PRAYERS ARE STILL WITH YOU AND YOUR FAMILY. I ENJOY READING ABOUT VALERY AND HOW MUCH SHE IS GROWING AND CHANGING!!!
BLESSING FROM IOWA!!
COURTNEY
Val is beyond adorable! What a cutie pie!!! It is so good to see her sitting!
Big Hugs
Can't wait to see the new pictures of you Val...doing so well and looking so beautiful!! You are such a Treasure!! Give Grandma Tina a big squeeze from us..you are so very loved!
Love the new pictures of the kids. Valery is so beautiful and the boys are both so cute. Happy to see Valery sitting up by herself. God is so good!!
Love you all.
Hi Sweet Val,
So happy to see how well you are doing!!! Just wanted to send you some big ole hugs!
Mwah,
Ana and Savannah (Warrior Princess!)
www.cotaforsavannaha.com
valery is looking so amazing God is so good so glad she recieved the gift of life Our children are miracle babies and teach us so much about life to never give up :)
Valery, you are looking marvelous. Can't wait to meet you guys in April. I have a feeling with the help from Easter Seals you will be walking by then. Big hugs and kisses
Hey I haven't heard from you in a while so I thought I would drop you a message! Valery is looking GREAT!!!! In one of the pics I can see the shoes that I bought her! Too cute! When she starts using her new toy to walk you gotta send me a pic of it! I really miss talking you all of you! Hope all is well. Take care and MUCH love!!!!!!!
Just to ease your mind, I am told the concert is hard rock but there are no anti religion themes to the music.
Thank you for your support and your questions about the concert.
Glad to see Valery is doing to well. I'm just a little curious about the type of music the concert benefit is. I am a christian as you are, and I just want to make sure it is not sacreligous music (as the band name seems to be) before I make plans to attend to show my support.
I can't believe how beautiful little Val is turning out to be. I love her red tint hair. She has changed so much since her transplant.
Message from SC to Grandma Tina...I found out yesterday in a BIG WAY, that you are a hero to a lot of great people down here in SC!! They just cannot stop talking about you and your gift. You are my hero too, and I hope that you always remember how much your gift of love and life has impacted a lot of lives here. I also want to remind you that we are constantly giving thanks to you and Grandpa Randy for all that you have done and continue to do for Val and her family.
With lots of love,
Deb and Matt
Great new pics! Val looks so "skinny" without all that swelling in her belly! Val is simply gorgeous!!
We had a super great time at the very successful fundraiser yesterday. What a great bunch of volunteers to work with and we met so many wonderful people from the Midlands area. We live in such a great place with great people!!! I am so proud to be a South Carolina gal!
You rock Valery!!
Love Nana and Uncle Matt
She is so stinkin cute!!! That giggle brought tears to my eyes! Give her big hugs from Marissa and I!
Hugs
Pam
Shes so CUTE!!! When she was laughing at her brother my heart just about burst with happiness!!
The video is excellent, I am so glad the news crew there did a follow up so that everyone can see how great she is doing and how happy she is with her brothers. They all did a great job!! My favorite part was Jonah kissing her that was too cute.
Love you all,
Grandma Tina
Loved the news clip from WLTX! So great to see how much better she is doing- she is like a new little girl!
What a great vidio on wltx.com of Val and the boys. She looks amazing and oh, how I love that laugh of hers!!
God has been so good to us, hasn't He???
Vals Nana
I just looked at all the pics she is looking so happy and healthy..and of course beautiful but she was beautiful before surgery as well...I am glad to see that she is doing so well. Keep it up Val we are all praying for you and your family!
I just finished looking at the new pictures and Valery looks GREAT!!! I was very relieved to hear today that her labs were in error and that everything is just fine. She a very beautiful girl you guys, thanks for the pictures and tell everyone that I said HELLO =)
My goodness, she is ready for the cover of "Yes I am the most beautiful!!" Our family is so proud of Val and her family. In our prayers each and every day. She is shining brighter than the Sun, Moon and the twinkle of the stars!!!!
Goodness she gets cuter by the day!!
I love the new pics she looks absolutely gorgeous! I am glad to she is doing so well. What a mircle she is :) Sending my love to everyone!
Love you all,
Aunt Char
She is asolutely beautiful, she looks so healthy and happy. What a true miracle she is.
Love you all.
Grandma Tina
I'm thrilled!! Couldn't be happier!! Val is a true miracle baby. **And through Him, all things are possible.**
What a super trooper!!! her labs are actually better then Marissa's!! She is such a cutie pie! Watch out now because before you know it she'll be running after your boys and then it will really be trouble!!!!
Big Hugs
Pam and Marissa
Hi there guys, I'm glad that you made it back safe and sound, I just heard about Val's lab results today and all I can say is AWESOME!!!!!! That girl is doing GREAT!!!!!! Carly, tell Chris and the boys that I said HI =)
i am sooo glad everything is working out see what faith does?? i am pretty sure she will get the physical therapy. and i hope she does it is the best thin for her. my daughter was a little behind because of some health issues and its worked amazingly!!! youll be suprised how fast she developes!!! love to all of you
I have been keeping up with Val through it all. She looks amazing. I am so glad she is doing so well. God has worked a miracle.
We miss you all very much, hope you have a safe trip home. Give the boys and Valery kisses and hugs for all of us.
Love you all!
Hi I am your friend on myspace and I have been following your story for a little while now and am so glad that the baby did fine with the transplant.. I have been praying for you and your family for god to give you all the strength that you need to continue to go on. May god continue to bless you all and keep you all safe as well. I am so glad that you are finally going home and I hope she continues to do well with the transplant too. May god bless....
Yea!!! Going home sounds like a serious winner!!! She is so stinkin cute I love the face that she has in the picture with her tinkerbell shirt it is just funny!! I am going to do a speech on organ donation in march or april and I would like to use some of Val's pictures in a power point presentation if that is ok? I wouldn't use any real details just that she has had a liver transplant for BA and it was in Dec. If that is ok could you PM me on LF and let me know?
Big Big Hugs to all of you!!
Pam
Bryson had the same thing about 5 months post transplant that you explained in your journal (first ambulance ride). It's the weirdest thing cuz it was the same thing with the gagging and throwing up. We spent about 24 hours at Richland and then he was fine. They said it was some bug that ran it's course. HUMMMM that is weird. Were so happy she is doing well and your coming HOME yeah:):) Your lucky we were in chicago for four months. See ya soon.
So glad you are getting to go home but so sorry we missed seeing you yesterday. Can't wait to meet you in April. You are always in my prayers. Big hugs and kisses from me and Treyton.
Wow what a scare barry still has puking episodes at times and gives us scares we have rode in the ambulance to many times so I know the feeling Praying for Valery everyday
Wow! What a scare glad that all is well still though! Yea for being able to go home to your own house again!!!! I bet everyone (especially the boys) is excited huh!!!
big big hugs
Pam
PRAYING FOR YOU VAL....
Whew!! What a scare! I am so glad everything is good with our little angel! That little gal just melts my heart a thousand times a day.
By the way, my favorite new pictures are the two with her big brothers! She does love them so, doesn't she??? And guess what, the guys love her just as much, or more....
Val, hang in there my beautiful and strong little gal!!
Your mom just e-mailed an update about Valery. I hope that she is okay and that it is nothing too serious. We are praying for you all!
She looks fantastic! The pictures are almost impossible to believe. Everyone at the office wanted me to share our elation. I can't wait to see y'all when you get back. All of you have been in my prayers. Take care and God Bless.
She looks sooo good:):) Those cheeks are adorable she looks like a healthy baby now. God is AWESOME:):) When are you guys planning on coming back home? Can't wait to see you. Give hugs to Val for us.
HURRY UP AND COME HOME!!!! I AM GETTING ANTSY TO SEE YOU VALERY!! You look amazing and I can not wait to wrap my arms around you and give you a million kisses!
The new pictures are so cute! She looks just like a little Jonah!! Can't wait until you are home!
P.S. If you need ANYTHING EVER (and I mean that from the deepest part of my heart) PLEASE let me know!!!!!! Love you Valery!!!!!
Hey Carly I'm SOOOOOO happy to see this sweet baby girl doing so good! It's like a different baby! She looks like she is on a full road to recovery and doing it fast. I just wanted you to know I'm mailing the rest of the keychains to your Mom this week so you can sell them at her local fundraisers. I also wanted to let you know that Joyce can no longer handle the keychain page for Valery so today will be the last day of it being up but I just want you to know that we still love Valery and support her 1000000000000% !!!!!!! I would LOVE to keep upi with her progress and continue to follow her story. And of course I'll keep sending her packages with goodies in there for her! I know I only helped a small bit but I love that you included me in helping get Valery's name out there for people to read her story and pray for her! PLEASE PLEASE PLEASE keep in touch with me! Give that BEAUTIFUL baby girl a BIG hug for me!!!! Take care and MUCH love! Talk to you soon!
Carly, I swear she's the cutest little thing. I just wanna squeeze her. Those little cheeks of hers are ADORABLE!! We're all so tickled that she's doing so well. I know she'll continue to heal & grow stronger. You know you're all in my prayers.
Oh, my, she is soooo beautiful!! I am so happy to hear all the stories about her feeling better and doing little things that she could not do. And I love to hear her little voice over the phone!! She sounds just like a little angel!!! I am getting geared up for the rest of my family to get back here for many hugs and kisses!!! Be safe on your journey and remember....I love you all so much!
Yay! So glad to hear that you guys will be headed home soon. I sure hope everything goes ok with her labs today. I'm sure it will! She is truly a little miracle baby and it's amazing to see God working through her in such an awesome way. See you guys soon!! I can't wait to see the "new" Val.
Sending Ms. Val lots of hugs and kisses!Stay Strong Warrior Princess!!!
Savannah (Warrior Princess!)
www.cotaforsavannaha.com
Beautiful baby Val is a very incredible little girl and I just know that everything will go well on Monday, she has not come this far this fast for nothing. She is amazing and beautiful =) You go Val!!!!!
So happy to hear how well she is doing!!!
I'm glad to hear that Val is still doing great. I really didn't expect any different. I'm sure the doctors are in amazement at how well she has been throughout this entire liver transplant process. Get those bags packed! I know that everything is going to be just fine!
Valery looks great, and she's got such a fantastic family and group of friends. She's in good hands!!
We are cheering for you all from SC. Come home soon.
You are such a precious lil Angel. Hurry home for I want to meet you in person someday. I will be meeting your NANA Friday and our whole family is cheering you on. Have a safe trip home!!!!
Your Looking Great! You are one lucky girl to have a family and friends who love you so much =) Never met you in RL But you have touched me as well as many
Your little girl looks amazing:) You guys have been awesome through this. We can't wait till you come home so we can start to plan play dates. God bless!!!
Man that is one cute kid!!!! I love her rosey cheeks!!
Sorry I haven't been on here to support you like I always did ,But I am back and i must say valery is such a beautiful and amazing little angel who is such a strong fighter ,I am so very happy to hear things are doing well i will continue to pray for you and your family GOD BLESS YOU AND MAY GOD BE WITH YOU AT ALL TIMES .
Praying for you Valery Hope you get well soon
Valery, you are looking amazing. Praying that your levels are elevated due to a viral infection and that you fight off quickly. Hoping to meet you on the 17th if you have not already headed home to SC. Keep fighting
Carly, I must say that Val is a DOLL, and a ham! I said a extra prayer for you guys like you asked. I hope and pray that things are ok that way! God bless!
We are still praying hard for Miss Val. She is still (and will be for a long time) high on our prayer list! She is the cutest pink little princess!
Big Hugs!
Pam
Hey little girl! I'm still praying for you. I hope that this is just a little virus and you get better soon. I cannot wait to see you back home again.
Okay, everybody lets all pray very hard that this is just a simple virus! Together, and with the help of God, we can make this happen!!
I am happy for the good labs and I am happy to celebrate Vals 9 month old birthday along with her one month celebration of her "new liver birthday"!
I agree that grandma Tina is an angel and I am so happy that she is feeling great! My many prayers for NO CMV!!!!!!!!
All my love and then some...
After so many tears of sadness...FINALLY tears of happiness! Thank you for sharing those interviews. Its so good to see Valery doing well
I am so happy things are going great for little Valery. I will continue to keep her and your family in my prayers. May God continue to watch over you and bless you! With love,
-Adina
Those interviews were great! Good job everyone, especially our little angel, Valery! You look so devine, little gal!
Many, many hugs and kisses from back home and we cannot wait to see you all again!!!
God bless..
I will pray that she stay well. and the rest of her life be filled with lots and love and joy. just remember the lord will always be with her. but as well i will pray for my daughter to watch over her to stay well.
I am glad to see your sweet baby girl is doing so well. Praise God for her donor! Way to go Grandma! Praying yal are home soon!
Just looking at our local news www.nbc.com Val is on the front of there site. With the success story, so glad things are going well for the Huttner family.Happy New Year!
Happy New Year Val!!! So glad you are doing so well. what a wonderful way to start 2008. Keep strong and of course you are always in my prayers. Hugs and kisses
Praises and Prayers continue for the continued good news and recovery of little Val! She is looking so pretty with pink skin! I'm so happy to hear that she's in good spirits and enjoying her freedom from liver disease and the hospital!
Love, The Coopers
Just wanted to share that a very special little girl, much like Valery, is right now in surgery to recieve her donor liver! Savannah Anselmo has been waiting for a liver for many, many months. Please pray for her and her family, as well as for the loss suffered by the donor family.
You have been with Valery and our family throughout all of this and for that I thank you all!! Please join us in prayer for the Anselmo family and little Savvy, too!!
Congratulations!!!! She looks wonderful!!
Lexington, SC
Val looks so pretty in her Ms. Santa suit. It looks very warm and cozy. Bring us some snow back to South Carolina when you come home:)
I agree with Debra and Nichole too- you guys need to come home!!
Ditto what Nicole said!!! We miss you guys so very much!!
This has just become one of the best years EVER!! I am sooo excited that you guys get to leave the Kohl's house...that means one step closer to being back in South Carolina. 2007 gave us such blessing I can't wait to see what 2008 has in store for everyone. Love you guys and can't wait to see you again!! Keep up the fight little Valery :)
I love the new pictures!!! The one with Val and Rudolph is spectaular it looks professional! The boys are cute as all get out as well! Happy Holidays!! Give Miss Val a hug and a kiss from Marissa and I!
I am so glad that you guys had such a nice Christmas. Valery looks so cute in her little Mrs. Claus dress! God bless you- we are thinking of you and cannot wait for you to come home.
We missed you guys at Christmas, but are glad you will be home soon! The boys are so big - I cannot believe it! Hurry home, we're still praying!
I love all the pics especiallt the one with her on the reindear and the one w/ Carly with that BIG smile. Looks like Christmas was a blessed and wonderful one. Keep warm! God bless and Happy New year
God Bless you guys. Your strength and Faith are such an inspiration. The Lord has such an amazing plan for Valery and your family!!!
Merry, MERRY Christmas!!!! I was talking about how well little Val was doing to my family yesturday and they were all so thrilled. What a gift, and what an inspiration your little girl and your entire family is...
Have a wonderful day....and God bless!
~::MERRY CHRISTMAS::~ I know it's the best Christmas! I hope you all have a safe,blessed,warm & Merry one! May this New year be full of Joy and prosperous! God Bless and Val is a true Miracle from God
Merry Christmas You got the greatest Gift this Christmas Valery :)
I can not get over how wonderful she looks. She is truely a miracle!!! Merry Christmas Val and family!!!
Wishing you a safe holiday and Wishing you blessings for a New Year!!!!
Your daughter is so beautiful, she looks so good. you are all still in our prayers. You have a wonderuful Christmas. Enjoy that Christmas miracle you have.
Wishing your family a very Merry Christmas!! I know this will be the best Christmas ever!!!
she has been in my prayers and i am so happy that she is ok. I know how horrible it can get i have 2 special needs kids. She is so beautiful stay strong god has something wonderful stored for her in life.
Val looks even more beautiful each new pic! She is so pretty in pink(not just the outfit but pink SKIN!) Yeah Valery! I'm so happy so see the wonderful smiles you now have. I know you are feeling better! Your family continues to be in our prayers! Merry Christmas and Happy New Liver 2008!
The Coopers
I cannot get over how great Val looks! And that smile it is to die for!!! I am so happy she is doing so very well! You guys continue to be in our prayers!
Love the pics taken at the Kohl house. I can't believe how happy and white she is! So beautiful!!!
IT WAS SOOO GREAT SEEING YOU GUYS:) VAL LOOKS GREAT. YOU CAN JUST TELL SHE FEELS SOOOO MUCH BETTER:):) WE CAN'T WAIT TILL YOU GET HOME AND WE CAN GET TOGETHER FOR PLAY DATES:):) HAVE A GREAT CHRISTMAS. I KNOW YOU CAN'T ASK FOR A BETTER CHRISTMAS GIFT THEN YOU HAVE GOTTEN. GOD BLESS.
LOVE KIM, BRYAN AND BRYSON
Val is so beautiful and pink. What a awesome Christmas package. I wanna cry tears of joy when I see the before and after pics. You have a wonderful Grandma. Have a wonderful Merry first Christmas with your bundle of joy.
Wow!!! Isn't she so beautiful??? What a miracle God has given us this Christmas! I constantly fight tears in my eyes at the joy of this wonderful event. Tina, you are forever Vals angel and my hero!
It will be lonely in Nana's house this holiday, but there is joy here for this has been the most blessed time ever!! Val, I miss your precious self and your wonderful brothers and mommy and daddy! I cannot wait to hold you and boys in my waiting arms!
Kiss, kiss, kiss, kiss......
Valery looks absolutely BEAUTIFUL!! I am so happy that everything is doing so well! I can't wait to see her for Christmas!!
Hi there I am so glad your little miracle is foing good I am from liver families.com I am Glad you liked the card and pic we sent you next month i want to put together a little care package for valery A baby doll and some few things that she can have to play with while she is recovering She looks great :)
Wow she looks wonderful! She is truly a little miracle. I am so glad so see she is doing so well. I can't wait to see you guys on Monday! It will be great to get to hold her and see what she is like now.
Love Ya! :)
Truly a little miracle. What a Blessing. I am so happy for you all, seeing those pictures truly brought happy tears to my eyes. Valery looks GREAT. Such a beautiful baby.
Camden, SC
Wow, those numbers are great! I am so happy to see her smiling and playing...she is so beautiful and it makes my heart swell to see how wonderful she looks. Hope to see you guys Monday afternoon!!!
Love Ya's
I AM SOOO GLAD SHE IS DOING SO GOOD AND IM GLAD TO HEAR SHE IS TRYING TO ROLL OVER IF YOU NEED SOME TIPS ON SPEEDING UP HER DEVELOPMENT WITH CRAWLING, ROLLING OVER STUFF LIKE THAT LET ME KNOW MY BABY IS GOING TO A PHYSICAL THERAPIST BECAUSE SHE DIDNT DEVELOP AS FAST BECAUSE OF TORTICOLLIS SO I HAVE ALL THE STUFF DOWN PAT NOW AND ITS EASY PLAY TIME FUN SO LET ME KNOW
I am so very happy for oyu guys and I know this Christmas will be and is a special one! Val looks great, I told ya she'd be your pink flower b4 u know it. Thank you for keeping updates so we all know how things are going! Much love and prayer to you all! God Bless and have a wonderful & warm Christmas and New Year as well
Carli & Chris,
Valery looks so WONDERFUL! I am so happy that she is doing so much better! Thank you for the updates & for posting the pictures. She is one beautiful baby. You are all in my thoughts & prayers. Best wishes for a VERY MERRY CHRISTMAS!!!
she is looking sooo much better I'm so glad that her surgery went well and that she is getting to be a normal healthy baby girl her pictures with just nothing but smiles is absolutely wonderful we're still praying for a good healthy full recovery god bless and have a absolute wonderful christmas and happy new year
your friend Joi Wassinger and Family
Wow! Valery is looking really great! We can't wait to see her when you guys get back in town. Merry Christmas!
I SO GLAD THAT SHE OUT OF THE HOSPITAL I HAVE BEEN FOLLING THIS FOR 4 MONTHS AND THERE IS SUCH A CHANGE IN HER SKIN HER EYES AND HER BELLY MY HUSBAND ASK EVERY DAY IF YOU HAVE POSTED ANY THING WE WILL BE SENDING HER AND HER TO BROTHERS SOMTHING FOR CHRISTMAS LOVE TO HEAR UPDATE SO KEEP US UPDATED WHEN YOU GET TIME GOD BLESS YOU FAMILY AND YOUR ALWAYS IN OUR PRAYERS
I am glad you guys are out of the hospital. What a wonderful early Christmas present for you all. Give thanks to GOD for all he has done. Peace and Blessings.
Valery you are so beautiful and pink. I can't beileve you were just transplanted less then a month ago. I'm so happy that you are doing so good. I love the pictures. I just want to grab your chubby cheeks. Hugs Shawna and Addi
Following your story and praying for all of you daily.
Valery you are so pink and your eyes are so white. I am so happy to hear that you moved over to Kohl's House. We sent a package to RMH so I hope they will contact you. I am planning on coming to visit after Christmas if the weather cooperates. Merry 1st Christmas Val!!!!!!
Im so glad Val is doing better! Its going to be a long road but you have so many people supporting you and being there for you every step of the way!
I would like to wish you Merry Christmas. God did give you a mircle for this christmas. He give you Val health back. She is a beautiful little girl. You are in my prayer.
You don't know me but I would like to help. Could you contact me by email. blossom_slc@hotmail.com.
she looks so great guys, so great. THANK GOD for GRANDMA TINA :) Everyone has a reason for this life, and grandma Tina was an angel for her grandbaby.
Prayers coming to you guys all the time.
She looks sooooooooo PINK!!!!!!!
Your little one is an inspiration........
xoxoxoxo for little Val and the family!
Valery looks so great! What a beautiful baby you have!!! As soon as y'all post your room number I will mail out your Christmas Card - so, sorry if you get it after Christmas! Hopefully we will see you all real soon.
Val looks so much better...her color, he swelling, and everything. You looked so happy being able to hold her in your arms again. I am continuing to pray for your family and Val. This is truly a Christmas miracle!!!
I am so so glad that shes doing so much better. i have been and i will continue to do so. im so glad that she has made a great recovery. and i know she will be better each day. like you have said this is a really great christmas present she could ever get.
Wow! She looks so beautiful! I am so happy for you guys!
The new pictures of Val are AMAZING!!! I just cannot believe it- she looks like a new (healthy) baby! We miss you guys, but we are glad she is recovering so fast and is doing better. I know you are happy she will be at Kohl's house soon- a home away from home for a little while. Take care- you are in our prayers.
I'm so happy val is looking so well!! She is such a beautiful little girl!! My thoughts and prayers remain with you all. God Bless. Love you all!! Aunt Sharon
HEY CARLY SHE IS LOOKING GREAT SUCH A DIFFERENCE IN HER SKIN COLOR SHES NO LONGER YELLOW!!!!! I LOVE THE PICTURE OF YOU AND HER ITS PRECIOUS YOURE IN MY THOUGHTS AND PRAYERS AS ALWAYS. XOXOXOX KELLY
IT MELTED MY HEART AND MADE ME TEAR JUST TO SEE HOW MUCH BETTER SHE IS DOING AND THAT YOU GOT TO HOLD AND FEED HER AGAIN. I AM STILL PRAYING FOR A SPEEDY RECOVERY AND EVERYTHING THAT YU GUYS HOPE FOR. VAL'S COLORING IS GREAT AND I SEE YOU GOT YOUR SMILE TOO! GOD BLESS
WOW!!! She looks awesome! Praise God! I am sooooo happy that she's made a great recovery and ya'll are about to come home! What a great CHRISTmas present!! I'm still praying!
Our baby girl looks so good!!!!!! I'm glad to see her smiling =)
OMG, I love the new pics of Valery. She looks so good, her coloring is great and she looks like she might be gaining some weight..Yippy!
All my love
Hey, Glad to hear that she is getting better. She is SO Beautiful, and I can't believe how good her coloring is.My thoughts and prayers are with you and your family :)
WOW!! Great pictures! What is up with the little "devious look" on her face in that one pic?? Is she planning something really good?? I cannot believe, now that she looks so well, how much she favors Jonah! And is she a knock out looking gal, or what? I am so very proud of her and of you two for taking such good care of her! Kiss her really big for Nana!!!!
All my love, guys!!
Kim, try the RMH house about a block further down the road. They may have an empty room there and they provide for patients at CMH as well.
I agree with you that Valery and Bryson should grow up together. They will always have such an experience to share that others may not understand!
I pray they will always be buddies!!!
Oh wow, what a good read. Thanks for sharing as usual.
PRAYING FOR YOUR VALERY, My 19 month old runs around with her little green keychain and it always reminds me of her.
LOVE YOU, PRAYING FOR YOU.
Hey, I didn't know I could leave you all a message until now. I have been following the story almost every day. I spoke with Carly a few times on myspace before transplant. I am soooo glad to hear that Valery is doing so well. The pictures I have seen of her look great! I will continue to pray for all of you. Take care.
yeah, youre in your own room!!!! Now you can decorate for Val's first Christmas!!!
we will be at the Kohl's House during Christmas :) so we can decorate our room there!
YEAH your now on the 6th floor that is an accomplishment:) If you see nurse Donna tell her hi from Bryson. We love her:):) All the nurses are GREAT:):) Well, we got a call from the kohls house and there isn't a room available for us. We might just end up in a near by hotel. We will look for ya on 6th and if your already at the kohls house we will come see ya after his evaluation. I can't wait to see Val her pictures are amazing!!!!! She is sooo special. Her and Bryson need to grow up to be close buds lol:):) Hope you and Chris are holding up. See ya soon.
Thinking of you guys everyday!!!
Kim, Bryson and Bryson
Sending you more love than you could ever know!
I just tear up when I look at her pictures here, for I know where you are in mind, and heart. The mix of emotions you are feeling right now is so intense, in many good ways, and not so good ways. SHE IS INCREDIBLE!!! and so are you guys! Keep hangin in there, I hope I can come see you all soon. It seems like it will never come!!
Love always,
Shannon
YAY!!! OUT OF PICU!!! IM SO GLAD FOR ALL OF YOU THIS WILL BE A STORY OF A CHRISTMAS MIRACLE YOU CAN TELL HER CHILDREN ONE DAY!!!
Woooohooooo Warrior Princess...way to go! You are so strong and doing so well...so glad you are out of the PICU and on the 6th floor...you deserve a room with a view!
Always in our hearts,
Ana and Savannah (Warrior Princess!)
www.CotaForSavannahA.com
Hey, guys, how about some pictures of Val in her new room and without most of those pesky tubes! I know she looks good!! Nana wants to see her, please?????
Love ya!
Dear Carly,
I know it's been a while since I wrote, but with the house fire and all, it's been hard to have time to get on the internet since we still don't have a computer. But I am so thankful to know she is doing really good at this point in her little life. Also, like you said, a great Christmas gift to save her life. I'm keeping you guys in my prayers and believe God does have something exquisite planned for val! Continue to take care of yourself and her of course!
Much Love,
Debra Croxton
I am so glad to hear this great news! I am not surprised that Val is doing se well....she has an amazing Mommy! God is GREAT! Blessings!
I am so happy that you are finally getting to hold Valery, what a special feeling it must be after all this time and to still be able to breastfeed, WOW thats so great! Love you guys.
SHE LOOKS AMAZING in her pics!!!!!!! CONGRATS!!!!!! I cant wait for a smile, either :)
she is looking great u can see the difference in her skin color majorly already!!!!im so happy for you and chris you got your christmas miracle early xoxoxox
Val looks Great!!! I am so glad to hear everything is going grat so far. I will keep your family in my prayers each and every day. STAY STRONG VAL!! Our prayers are doing miracles! Shes such a sweet lil girl!! God Bless You and your family
SORRY MEANT TO SAY I AM HAPPY THAT CHRIS IS ABLE TO BE THER WITH YOU AND VAL
CARLY I KNOW YOU ARE SO HAPPY ABOUT BEING ABLE TO HOLD AND FEED HER, I AM CHRIS IS ABLE TO BE THERE WITH YOU TOO! YOU GUYS ARE TRULY BLESSED WITH A BEAUTIFUL FAMILY AND LOVED ONE WHO ARE WILLING TO DO WHAT THEY CAN!(ESPECIALLY GMA TINA)I HOPE AND WILL PRAY FOR A FAST RECOVERY! GOD BLESS
SHE LOOKS WONDERFUL, HER COLORING IS GREAT! I AM SO HAPPY FOR LIL VAL AND YOU GUYS AS WELL! YEAY! GOD IS GOOD!
She looks SO GOOD! Her color, her belly, WOW! She's truly a miracle girl. I continue to pray for her speedy recovery. Be patient...you'll see that smile very soon!
YIPPPEEE!!!!! That is so awesome your almost out the door!!!! we continue to pray!
God is doing miraculous things for our beautiful Valery, I thank God every day that I was able to be his instrument in helping Valery to get better. It amazes me that no matter how discouraged we get God always has the answers! Love you all!
Oh my goodness she looks wonderful:) We are looking forward to seeing you guys next week YYEEEAAAAHHHHH!!!!!
Love,
Kim, Bryan and Baby Bryson
I am absolutely amazed at how beautiful our little gal is!! Oh, and how she looks like her brother, now! God has blessed us with a miracle and I am so very thankful to him for bringing Valery to this place. The Childrens Memorial Hospital works hand in hand with God!!
Valery is so very beautiful and looks so peaceful in those pictures. She must surely feel strange to be healthy!
Bless everyone who keeps this little gal in thier prayers!!
I just want to say that she looks wonderful!!! May god bless you and keep you well!!
Merry Christmas and Happy New Year!!
from the Soppes
I was my space just browing,and came across your page,and have been following your blogs about valery.I am so glad the surgery went well for Val and her grandma Tina.Val looks amazing, even more beautiful....God Bless You All!!!!
It is so wonderful to see the new pictures and those pretty eyes!!! I am just amazed at the wonderful work God is doing in Valery's body to heal her- - it is a miracle!! I am so thankful that things are going so well and that so much burden has been lifted from your family! You have such a wonderful, loving family and it has been so hard to see everything you guys have gone though over the past several months. I am so glad for some relief and to see how much better she is! We are still praying for Val throughout her recovery and cannot wait to see you guys back home when she is better.
Love, Katie
Val's color looks sooo good in the new pictures!!!
Im still praying for your family, take care!
Valery, you look amazing so white and pink. So glad to hear that mommy gets to hold you today!!!!! I knew you would be up on the floor by Friday way to go girl. Stay strong and give mommy a smile.
YEAH!!!!!! I can't believe how good she looks!!!! So beautiful!!! I'm SO happy for all of you!
WOW Valery is looking WONDERFUL! I am so happy she is doing well..... (((HUGS)))
Oh She looks so good! That is wonderful that she is finally off the vent!!!! Yea!!! Keep going little princess! We continue to pray for Val and Grandma's continuing healing!
Still praying for sweet Valery! She looks amazing,
give her a kiss for me on those adorable chubby little cheeks!
I am so glad that everything is going in the right direction. She is a fighter. =) You have a beautiful daughter that has been granted the chance to live a healthy life. Thank you for keeping us up to date.
I have been keeping up with your story and I am so glad things are looking so good for Valery, she is a very beautiful little girl and I will be praying for her recovery everyday.
Whew... Glad they didn't find anything! We are still praying. We love you!!
Glad things are going well still. PRAYING FOR YOU. I got my KEYCHAIN. Thank you!!!!
I wish we could see new pics of her!
There are post transplant pictures, and we will add more sometime today
Hope all is well with Baby Valery.... Call me if you get a chance or just wana chat!
Just checking in on Miss Valery...hoping no news is good news. I know you are worn out...but hang in there! I am praying for all of you.
Hello family. I have been following your story on WLTX in SC for some time now. I am so glad that you found a donor so close by and that Val's #'s are looking good. Want be long and that nasty tube will be out. Keep the faith. Peace and Blessings to you and your family. GOD Bless.
we really appreciate you following valery's story!
We were just checking on Valery hope everything is going good. Tell her Addi say hi. I was looking at Valery's pictures and Addi just kept waving and yelling hi. Give her hugs and kisses
My thoughts and prayers are with your entire family. Such a precious little girl...you know that God has special plans for her. My He continue to bless and keep you all in his loving arms.
Our family has been praying for Valery since just after you found out that her dad was not a match after all. I am sure this has been a very heartbreaking ordeal, but the greater the struggle, the greater the triumph. Thank God you have seen a triumph of miraculous proportions! We'll be continuing to pray for Valery and Grandma Tina's recovery!
Valery looks wonderful, glad her coloring is going back to normal as well all the #'s for everything...GOd has his hands all over her. She is such a blessing, still praying for her and family..God bless
I wish ya'll the best and will keep you in my prayers
Oh, and one more thing. Vals great grandma Julie came over a while ago to see her pictures post op and was also truly amazed! She also thinks our little princess looks good and it made her feel better about them all being so far away from home, too!
I have only been gone a day and already miss our little princess a bunch. With Gods help, I know that she will continue to improve daily! She is a strong little gal and will continue to fight this with her little hand in Gods hand. And how beautiful she is without all that yellow, or as her surgeon said, fluorescent! I am so proud of her and mommy and daddy too! Keep up the good work you three!! Want to see some pictures real soon of her sitting up and, yes, SMILING!!!!!
Wow Valery looks wonderful. Praying she gets off the vent and to a room by the end of the week. So glad Grandma Tina gets to come see her. Grandma Tina you are a hero. Keep strong Val and keep fighting.
Valery looks Great Keep looking to God And you guys will get through it with God because I always have to remember this All things Are possible with God Because Are children are very fragile at times There will be a few flat tires along the way but you will get through them and You will be stronger then ever :)
I love the pics of the whole family together and especially the pic of Valery looking at big brother Noah! You can see that she knows him and loves seeing him! I'm praying for your whole family!
Blessings to you all! Many prayers for Valery, G.ma Tina and you guys! Prayers that the fluid issues resolve and Valery is breathing on her own! Prayers for strength for the 2 of you as you journey this road of liver disease as parents. Love and hugs to you!
So glad to see that her color is so much better and that she feels well enough to play with her toys some. I am so happy that things are going so well and I'm praying for her every single day. Miss ya'll!!
She is such a strong girl. The pictures really do show how well she is doing. What a beautiful family you are all together. The boys looked so happy to see lil sis :) Our prayers are with you all.
It's great to see the pics of all of you and especially my precious little angel Valery, I am constantly praying for all of you. I love you all, see you Tuesday.
Don't children only do things when they are good and ready?? =)
It sounds like all the important stuff is going REALLY well.......I'm so happy for you all....
Hugs to little Val!
Sara & Jack
Val...keep fighting Warrior Princess..You are strong and doing well! We are happy to read that your liver is "happy"!! Good Job. Happy Birthday wishes to your Daddy..although we know he got the BEST birthday gift already in you!
Always in our hearts,
Ana and Savannah Anselmo (Warrior Princess!)
www.CotaforSavannahA.com
Valery I am praying for you baby girl. Stay strong and keep improving.
God bless Valery!!!!! hope she gets well soon!!!she is so strong. Get well soon honey!!!! i will keep you in my prayers
Viviana,Keren and Melissa
Blessings to you all. Valery is in our prayers. I know that God has the details all planned out. Try to roll with the punches as you wait to see his plan. Blessings to you and many prayers for an uneventful recovery!
She looks so great! I'm sooo happy she's doing so well!! I pray that she makes a speedy recovery! I check back here everyday to see if you've made any new updates. Praise God!!!
I cannot belive how white she is!!! She looks amazing!! That is so great that she is playing even being on that nasty ole vent!! Did you get the formula and the suprise for Miss prissy?
Thank you so much for the updates and pictures. The one with daddy and her eyes open brought tears of joy and happiness to my eyes. And her color is fabulous! It will be truly an honor to meet little Val, because she is my hero. Keep on fighting beautiful princess!!
"More things are wrought by prayer than this world dreams of."
Alfred Lord Tennyson
Out of difficulties grow miracles.
Jean De La Bruyere
It is so good to see that Valery is doing good. I hope she comes off the vent. but not until her little body is ready. She is constantly in my thoughts and prayers. Be strong Mommy & Daddy, she will fight through this. She is the strongest little girl. Thank you G-ma Tina for saving this little girls life words can not express. Sending love from Oklahoma.
Hey,
We have always stayed at Kohl's house since Em had her transplants. We were there for four months and Em was in the hospital for most of it. I wonder if they had a policy change? I stayed at RMH for years before transplant and it is nice, just have to share a bathroom...IKKY. We pray for you every day.
Joanna
I have a little boy born only a few days after your daughter. My family and I pray for you and your daughter while she is healing. God bless all of you.
she is so beautiful~ im so glad that she is doing well, cant wait for her to be up and happy and healthy, im jumping for glee! x0x0x0xx0
She is such a beautiful little girl!!!! I am so happy for you all, I pray everything works well.
I JUST WANTED TO LET YOU KNOW WE WENT THROUGH THE EXACT SAME THING.WE WERE ALL PACKED AND READY TO GO THE RONALD MCDONALD HOUSE BUT AT THE LAST MINUTE THEY TOLD US WE COULD STAY.SO JUST MAYBE YOU WILL BE LUCKY:)WORSE CASE THEY DO HAVE A FREE SHUTTLE I THINK THAT CAN TRANSPORT YOU.CHECK INTO THAT.SEE YOU GUYS SOON.GLAD TO HERE EVERYONE IS DOING WELL:) GOD BLESS
You don't know me, but I saw your story and was so moved by it. I have a 10 month old and couldn't imagine going through with her all that you have had to go through with Valery. I just want you to know that my thoughts and prayers are with you all. I hope that Valery and Tina are both doing well. God Bless!
I am so glad to hear that Valery is staying strong through all of this! Y'all are still in our prayers and hopefully we'll get to see all of you soon!
I lived in Iowa then and I now live in SC, but I used to babysit back in the 80's for a little girl Suzy Stark that needed a liver transplant that was a year old. I often helped give medicine and that little 'sunflower angel' really changed my life as a 15 year old. Although I moved away when she was 2 1/2 she still is in my thoughts and prayers and now Val is to. God Bless you and I hope a long and wonderful healthy life is ahead of Val and your entire family.
Hello Huttner family,
Hope Valery and Grandma Tina are recouperating well. I am constantly checking your site here for updates and am happy to see that things have gone so well this far. I know that God was with you all during Val's illness and I know that He will continue to lead you all through the healing process. Everyone here at church are still praying and will continue to do so. Give those little ones a big hug and kiss from me. We all look forward to a big homecoming!
God is good! I am still praying for lil Val and I am so happy and glad the G'ma Tina gave Val a 2nd chance at life. Thank you for taking pics, her coloring is loking better and I know you guys will see many more miracles happen as she heals! God Bless
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I'm so thankful Val is holding her own right now. I will continue to pray for all of you. Let me know if you need anything.
GOOD LUCK VALERIE! KEEP FIGHTING!
God bless you and your family. I pray healing over your very special little girl, just continue to pray and believe that God is the Master Physician, and nothing is impossible with Him, blessings to your family.
I am glad that Valery is doing really well. I still have Valery and the family in my prays. Get better soon Valery keep being strong.
The pictures are amazing. Brings back lots of memories. I can already see the difference and I know you can too. Keep fighting Valery. Still praying and sending big hugs to all of you. Grandma Tina you have given Valery the best present a girl can get. You are truly a hero.
I would love to sent Baby Val and her brothers a little something can you please tell me what they like? I have a 3 month old little girl and a 9 yr. old little boy. I think you and your husband are very brave and your little darling Val is a fighter.Thank GOD and her grandma.
Shelly from Prettycreations.
Just praying for you as hard as we can. TODAY IS A GOOD DAY. Enjoy life and THANK GOD we have come this far.
Please, please don't stop updating. I get on this site about 3 times a day to check on her. You have no idea how much I pray for your daughter. I am so unbelievably happy that she is doing well. "God, please continue to hold this precious child & continue to make her well. With you all things are possible. In Jesus's very holy name, Amen."
Praise Heavenly Father!!!! From our family to yours, this is the best Christmas gift anyone of us could wish for. I am so happy for all of you. She is a special "Lil Princess" that will grow up and do amazing things for this world. Just watch and see!!!I am crying as I type this for I am so happy all is well. Bless everyone!!
I've been trying to keep up with the news on Valery for the last couple months now. I'm so thrilled that prayers are being answered for you and your family. Keep the good news coming. Valery, you are such a beautiful little Princess. You are all in my thoughts and prayers for a smooth recovery!!
I am so happy for you! She is such a beautiful little girl.
There is nothing that words can really say, amazing, wonderful, a miracle, just scratch the surface.!!
I am just so happy for you all. This whole experience will just bond your family more than ever, making you each stronger. I know Noah & Jonah can't wait to have their little sister feeling better. Can't wait to see you all when you come back to SC. Tell Noah & Jonah I said hello & tell valery to get well soon.
Love, Heike
P.S. tell Chris early Happy Birthday!!
Wow! You really can tell the difference in her color!!
Still praying!
Thinking of you sweet girl..Keep on fighting. Everyone loves you.
Sweet Val,
I am sorry you had such a tough night and so happy to know that you will never remember it but I know that your Mommy and Daddy will never forget ... so BIG HUGS to them and to you little Warrior Princess keep fighting!!! I am so HAPPY to read about your big beautiful WHITE eyes!!!
Always in our hearts,
Ana and Savannah Anselmo (Warrior Princess)
www.CotaForSavannahA.com
WOW Val is a fighter! She is such a strong lil girl. I know things happen for a reason and God will help her through. Carly and Chris you are amazing parents with such a beautiful family. (((HUGS)))
I'M SORRY VAL HAD A ROUGH NIGHT. IT WILL GET BETTER WITH EACH PASSING DAY:) BRYSON NEVER HAD THAT HAPPENED BUT HE DID GET RUSHED BACK INTO SURGERY FOR THE BILE LEAKS. I DAYS GO BY FAST AND BEFORE YOU KNOW IT YOU WILL BE WALKING OUT OF THERE WITH A PINK LITTLE PRINCESS!!!! I DO REMEMBER THE FIRST TIME BRYSON OPENED HIS EYES AND THEY WERE WHITE:) WHAT AN AWESOME FEELING THAT IS. HANG IN THERE AND I'M HAPPY TO HEAR YOU TRIED TO GET SOME SLEEP LOL:) GLAD TO HEAR GRANDMA TINA IS DOING WELL. WOW, SHE IS OUT OF THE HOSPITAL ALREADY:) WE WILL SEE YOU SOON.
LOVE, KIM BRYAN AND BABY BRYSON
I'm sorry you had a rough night. I'll keep praying for you guys and especially Valery!
Val you are such a fighter. I'm so glad transplant went good. I'm sending hugs and kisses.
Wowwwwww, she is doing wonderful and I am keeping up on her story and praying so very very hard. I hope GRANDMA is doing well. I assume all walking angels on earth would be :)
Love ya, PRAYERS FOR YOU!
That's me down below by the way...not your relative..lol :)
I am so glad that she's made so far and she's doing so good! I pray that she continues to do great! How's grandma tina? Those pictures brought tears to my eyes seeing all those tubes and things on her! I'll keep checking back to see how things are! Praise God!
Those pictures brought tears to my eyes!! Poor little sweetheart w/ all the tubes:( I am so thankful she is getting better, her coloring looks 100 times better. God bless Valery, Tina and your family!! I'll keep checking this for updates. Praise the Lord for her recovery!!
You are doing a GREAT job Valery!!! Keep fighting and Stay Strong Warrior Princess!!!
Big Hugs!!
Always in our hearts,
Ana and Savannah (Warrior Princess)
www.Cotaforsavannaha.com
I remember Jack have a thousand things hooked up to him after the Kasai....it's a wonderful feeling as they take this tube out, then that one....I know it's heartbreaking, but I have the say....I know you said her colour was getting better 'slowly'.....when I looked at the pre and post transplant pictures it looks like night and day...even my hubby agreed....
Look at her and think...yes a lot of scary machines and tubes.....but it's her body and God working together to get her better.....
Hugs to your family!
Keep the good news coming. Your family will continue to be in my prayers for a smooth recovery and many years of health and happiness.
Valery, you look wonderful. Stay strong and keep fighting.
Hi! I am one of Katie's co workers at Aetna and we have been praying by knee mail and email for baby girl and your family.I thank God now for his miracles and healing that has happened and what is going to happen. I am pretty sure Katie told you but I speak from experience of defeating the challenges. My 2 year old had a rough beginning and we were told what she may not be able to do but just continue to trust in the Lord and be of good courage because Tyla is also a miracle that beat the odds and Valery is on her way. I am not worrying about Valery ( she is stronger than any of us)smile but this situation will only make you stronger. Glory be to God and blessings for you and your family! We are waiting for you in South Carolina and hopefully I will get to meet you guys one day! God Bless
Carly and Chris some of those picture of her post-tx are very sad. Glad to see she is off the vent. Hope she is well enough to enjoy Christmas with you and the family. HOpe the boys are handling all of this ok. You will all stay in my prayers.
Great job little princess! Stay strong Chris and Carly, you have a precious little fighter on your hands : ) And a very happy birthday to your mom! All of you are in my thoughts and prayers always! I can't wait to meet all of you. Take care and God Bless!!
Big hugs all around!
I just finished viewing the Pre-transplant pictures. It always amazes me when I see her with a smile on her beautiful little face, knowing she was in so much pain. I am so glad the transplant went well. Please update us after you get the results from her ultrasound today. Valery, Mommy, Daddy, & Grandma Tina are all in my thoughts & prayers. Happy Birthday to your Mom!
I am so amazed at how well Valery is doing. I hope she continues to do well. We are supposed to go down there on the 22nd but at the rate she is improving you may already be gone. Prayers for Valery and Grandma Tina.
I am so glad that things are going well. I can't wait to see the pictures!!
Lori (Lily's mom from LF)
We are soooo excited all is going well! Megan just told me about this web site and it's a blessing to be able to check on you all from a distance without having to call and get you out of ICU. I just wanted you all to know we are STILL praying and will until she's out of the woods. Give our love to all!
Get well soon valery So Glad you recieved the gift of life your a true miracle And God is Great all the time
Thanks for the updates! I had to share a couple of your blogs with the choir at church during Christmas rehearsal Tuesday night. It is so amazing how much her bilirubin has dropped. I am eagerly awaiting more great news. Hugs and kisses to those sweet kids of yours.
I am so glad that her bilirubin is so low. man that is like a newborn babies. take care of her
spokane,wa
God is good im glad she is doing so well. She is a precious little angel. Im praying her to have fast speedy recovery.
Hey Carly I am soo happy things are progressing the way they are!!! that is wonderful. I hope to come down soon to finally meet you all :)
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I am so glad to hear the great news!!! God is so wonderful and I can't wait to see the new healthy pictures of your precious little Valery! I give God all the Glory and Praise!!!
Nikki Daniels
I am so happy for you guys. I will continue to keep praying because I know it is not completely over with. God seems to be making this go as smoothly as possible for your family. And I just want to say that Grandma Tina is awesome. Now even though they will live far apart, they will always share something special. Praise God!
Hello!!! So glad to hear the GREAT updates :) Wow!!! Im praying for her to do great. This is all GREAT news. Im sorry she is in pain though. Poor angel.
So glad to hear the latest news!! I am so glad that her new liver is happy so far and the builirubin score is a MIRACLE!!! I am so so happy!!
What wonderful news!!!! The power of prayer is amazing!! I checked the journal when I got home and then again after I put my daughter down. I cried when i saw the good news! Praise God!!
I am so so so happy!!!!!!!!! Great job Valery and Grandma Tina you are an angel on earth. Praying both recover nicely and Valery is soon up on the 6th floor. Will try and make it up to see you all. Big HUGS........
Blessings Carly!!! I am so happy to read this wonderful news!!! I can't wait to see pictures of Baby Val and her pink cheeks. Prayers for a speedy recovery for Baby Val and Grandma Tina!
I cant believe her biliruben score!!!!!! That is awesome!!!! Depending on if we get these snow storms or not, I am planning on coming tomorrow evening..but we will see what happens tonight!
What wonderful news!! God is so good!
Christina Burton
Winston-Salem, NC
THANK GOD!! I CAN'T WAIT TO SEE NEW PICTURES OF THE HEALTHY VALERY!!! GOD BLESS YOU GUYS. I AM SO HAPPY TO HEAR EVERYTHING IS GOING GOOD SO FAR!! I KNOW THE ANGELS ARE WITH VALERY....GUIDING HER THROUGH HER RECOVERY!!
SHANNON
OH MY GOSH.... THAT IS A MIRACLE. PRAISE THE LORD
I am full of tears praising God for your family
I'm not sure how they measure bilirubin in the US (I know it's different in Canada)...but from what I gather, those numbers sound amazing.....!!!!
(I'm at work teaching and can't wait until my recesses to check and see how little Val is doing...)
Everything sounds wonderful!!!!!
Just want you all to know the prayers continue here in Iowa for little Valery and Grandma Tina! Sounds like everything is going really well. PRAISE GOD! Take care of yourselves, you will need all your energy when its time to take her home! Thanks for the updates.
Michelle (Weston's Mom on Liver Families)
I am so thankful for you blessing.I have worked with Grandma Deb and I know what a special little girl you have.I continue to pray for her recovery.I know this is the best Christmas you could have.
I am so excited to hear about the bilirubin levels! that is sooo amazing!
Wonderful News ~ waiting for some picture of your princess. Take care & God Bless
www.caringbridge.org/visit/antonioperez
I'm so excited! Valery is loved! I'm praying all goes well with recovery and all! Give that beautiful baby girl hugs and kisses from Tabatha and Baby Talon (born the same day as Valery)
Love Tabby and Baby Talon
I'm so happy for you guys and Valery! I'll continue praying for great bile and blood flow along with healing for both Valery and Tina! Blessings to you! I'm so thankful that Valery is on the post transplant side of her journey!
So very happy for Valery! Still praying, for a perfect and speedy recovery from grandma and baby!
Great news, hoping that everything works out just perfectly fine for you, and that baby Valery remembers none of it. She is soo cute!
Very Glad to hear everything is going good. Keeping you in my thoughts and Prayers!!!
Sounds like everything is falling into place...praise the Lord!! We will continue to pray for val and grandma tina and both to a speedy recovery!!
I am so glad to hear the wonderful news! She is such a beautiful baby..best wishes for a speedy recovery for the both of them and for life to return to normal for all of you.
JS
Cookeville, TN.
FANTASTIC NEWS!!! How happy I am for you. We will keep you, Valery and Grandma in our prayers.
I know well the road you are on. Not always the easiest, but boy is it worth it!
Lucetta, Liver Families Mum to Angus and Maggie.
I'm so happy for all of you! Valery and everyone are in my thoughts always and I'm praying for a speedy, full recovery for Val and grandma! God Bless!
i am so glade everything came out really good . i am still praying for valery and her grandmother tina ,for a speedy recovery god bless you all
I am a friend of Nikki Daniels, and I just wanted to say that our famiy is praying for Valery and her grandmother Tina, and for their speedy recovery!!! God bless you all. :)
im so excited everything so far has gone well! i will continue to pray...hard!
So glad to hear things went well. I can not wait ot hear how it takes and that she is doing well. PRAYING FOR YOU.
-Shelly Castaneda
www.prettyCreations.com
Praising the Lord for this Miracle! Praying that Valery & Grandma Tina will have a very speedy & uneventful recovery & that tommorrow's ultrasound shows good things & not one single bad thing. Praying for your family today & always. Love & Hugs from S.E., Missorui.
God bless you Valery. Keep up the good fight, you are one very strong little girl. Praying that you have a quick recovery. Grandma Tina, you are an angel, your heart must be bursting with warmth. Best wishes to both of you, and your family. Heart hugs from Boston, MA.
I'm sooo happy to hear everyone is doing so well. I know the feeling your talking about. It's a feeling that nobody could explain except someone that has experienced this. I forgot that they told us they might not be able to staple up Bryson to but they were able to. Thank goodness:):) That would have been hard to see. Give Valery tons of kisses. She is such a strong little girl!!!! I can't wait to see her:):) Please post some pics if you have time and keep the updates coming.
God Bless
Kim, Bryan and baby Bryson
Yea!! It brought tears to my eyes reading the good news! Thank you LORD!! And thank you Grandma Tina!! You are Valery's angel!!
I am so glad things went so well!!! You are in my prayers!
Praise the Lord!! Valery's wait is finally over. Tina and Val, I will continue to pray for both of you! Tina, you are an inspiration!! Valery, you are truly blessed!!
Yay! So glad the transplant is done! We are praying so much & have prayed all day! Hope the recovery goes as smooth as the surgery did!
woohoo go valery!! i cant wait until your all better baby girl.. we all pray for you in boston, ma!!! hope all is well.. and your recovery is gonna go nice and smooth.. prayers for grandma tina also!!!!!! your guna be fine baby girl!!! we love youuu!!!
So happy that things have gone well! Praying for Grandma Tina and Valery for a speedy recovery without any complications!((HUGS))
How lovely to read those words "It's In!"...we are overjoyed...please Val's Grandma a HUGE hug from us..and your Warrior Princess one too when she comes out of surgery!
So happy...so happy...so happy!!!
Praise God!
Ana and Savannah (Warrior Princess!)
www.CotaForSavannahA.com
I hope all goes well. She is in our Prayers!!!
Praying for Grandma Tina & Baby Valery, wishes for both to have a speedy recovery!
www.caringbridge.org/visit/antonioperez
Hey baby girl!!! I knew you were a fighter just like mommy :) I am soooo happy things are going well for you on this BIG day. Aunt Nicole loves you and is praying for a speedy recovery. Stay strong little Val
WOW I am soo happy for you and your family. Things are going just as we all prayed for. (((HUGS)))
I've been checking in all day. I'm so glad things are going well. I'll keep praying.
PRAISE GOD the surgeries are almost complete and that everything is going well so far!! Still praying for your families!!
I am praying for Valery! She is an amazing little girl and I know she will recover and be better than ever!
I'm praising the Lord with you that Grandma Tina is recovering in her room! I'll continue to pray for her and I'm praying for little Valery for the perfectly performed and recovering new liver transplant! Sending hugs to you all!
God be with you Baby Valery and Gma Tina! We are praying for a speedy full recovery! With Love! Bless you!
Waiting with you today (well virtually if you knpw what I mean) Lots and lots and lots of love and strength comes to Valery and her Grandma and of course the rest of the family.
Yeah for Grandma Tina! Sitting here bitting my nails waiting for news about Val.
Oh yay Oh yay. This is an EXCITING day!!! I am praying for the best.
PrettyCreations
Shelly Castaneda
I am so excited for you guys and am praying as hard as I can today!
Big big Hugs
Pam and Marissa
So happy things are going well. Our thoughts and prayers are with you baby Valery!!! Love The Gerber Family WI
So glad to hear everything is going well....
Prayers and hugs and me and Jack!!
Love Sara and Jack Magera (and the whole family)
Oh gosh guys!!! I think I am going to have the chills all day thanks to this. I am so excited and snxious for this day to bring you out on the other side of tranplant. This is truly a miracle, and a testimony of how awesome Our God is. We love you. When you see your sweet daughter tonight, you give her a kiss from Treyton and me. Okay? I put in my blog on Treyton's site, a request for prayer from all of Treyton's followers for Valery and Grandma.
Lots of Love & most of all Hope!
www.cotafortreytonm.com
I am praying for you Valery , On this very special day... You will get a new chance at life! Thanks to Tina to donated to Valery. What a miracle and inspiration you are to everyone! Heather and John (Waupun, Wisconsin)
Many warm thoughts and prayers for Valery and Grandma today! Hope surgery and recovery is smooth and fast for everyone!
So glad to see this update that things are going smoothly! I have been praying for you all morning!! I am so glad that today is your day!! I will be praying for you and your family especially hard all day today!!
Sweet baby! You made it to delivery!! Best wishes to Grandma and Valery for a great recovery :)
Prayers for Val and Tina. Hugs and prayers for you all day.
YEA Valery it won't be long now!!! I'm so happy for you baby girl! I can't wait to hear how wonderful you are going to do during your surgery!!!!! Keep fighting beautiful baby girl!!!! We all love you SO MUCH!!!!
I am praying for you Valery, On this very special day... You will get a new chance at life! What a miracle and inspiration you are to everyone!
Love, The Cruz Family
Wednesday, November 28, 2007
Dear Chris Jr & Carly,
Mom and I have decided that this years Christmas for our children and their spouses will be given to the The Children’s Organ Transplant Association (COTA) for the benefit of Dear Little Valery. This of course is in addition to our prayers. God Bless and Good Luck on Monday December 3, 2007. we hope that everything goes well.
Love
Grandma & Grandpa H
HOOOORAY!!! Valery will have her transplant surgery on Monday, December 3rd!! I thank God for his hand in this and Tina for graciously donating a part of her liver. It is a great thing you are doing for our Valery! We are off to Chicago this weekend!
Carly, I can not wait to find out the date. Please let us know and we will be up in Chicago to offer our support. Val is always in my prayers.
I am excited and pleased to hear about the test results. You don't know me, but my daughter Stephanie Rinehart told me about you, and then she sent the news story to me by email link so I could see it.
Your story is uncannily ours. I, too, gave life as a grandma to my grandaughter Alyssa, who was diagnosed with BA at 7 weeks. Alyssa underwent the Kasai, which only bought time, and at 7 months, I donated my liver at Pittsburgh Children's Hospital,and Alyssa began her new life. I deeply understand what you are going through...the emotions, the worry, the uncertainty, about a million other things, and a wish for a life for a baby...please, hang in there. I would have done it all over again. We will be praying for you all. I would be happy to answer any questions you may have whatsoever. I will be watching for the event. You can check out Alyssa's site at caringbridge.org/alyssarinehart.
Kindest regards,
Lesa Gallimore
Beckley, WV
igavelife@yahoo.com
What beautiful news. Many prayers are being said for Valery, Grandma, and family. My maiden name is Cole, and if Grandma is anything like our Coles, she is a fighter. With God, Valery, and Grandma Tina fighting, I see brighter days ahead. Stay strong and God bless.
Praise the Lord! Good things come to those who wait!! I am so so so very happy!!! I will be praying for Val and Tina!! I am just overwhelmed with relief and happiness for Valery. Thank you God for this wonderful gift of life for Val!!
Hooray TINA!!! This is exactly how it is supposed to be! God has done it again and Tina is His instrument! Praise God for the very best gift a grandmother can give her little angel!! You two will make a great pair, G'ma Tina!! Everyone in SC is praying for Val and Tina!!!
Got the call from Northwestern, I am a match for little Miss Valery, transplant hopefully will be sometime next week. Thank you Jesus!
I live in West Virginia and I am A positive blood type. IF there is any chance that I would be a match for Valery then I would be more than willing to donate part of my liver. I am 46. I have grand children and I would do anything in my power to save their lives, so I want to help this family also if at all possible. My email is thefurbyfamily2006@yahoo.com
My prayers are with you. Having a small child myself, this breaks my heart. I just read about this so I missed the can drive (I think.) I do have a large bag in the garage though if they will still do some good. Lord, bless this beautiful little girl, keep her healthy and strong until a match can be found.
Hi there. This family should contact Mocha Moment Coffee House in Janesville, WI to do a fundraiser for Valery. They do fundraisers all the time for causes such as this one. They are normally closed on Sunday's, but if there is a benefit fundraiser, they will open from 7AM to 12PM or so, and all proceeds go to the cause, nothing to Mocha Moment. The families usually help out at the fundraiser, and Mocha Moment employees donate their time for it. It's worth looking into. I don't believe they have a phone, but they are located on Center Ave. in Janesville near the VFW club. The owner is Steve. They are really great people. Good luck with everything!!
Val
I want to let you know am praying for you and I hope your daughter soon gets a trasplant I hope you find a match soon. I cried when I seen you on tv when you shared your story when I seen her picture I thought about my nicece so I hope things go well and my prayers are with you and your family too.
I live in Clinton, WI but am orginally from West Columbia, SC. As soon as I heard about Valery, I rounded up my cans and took them over to Beloit. I am praying that everything will work out for her.
Love and Prayers from a local Gamecock family
joeandrobin1980@yahoo.com
Hello, I am a mother of one and I just thank god everyday that he is just fine and to hear about this kind of situation just kills me. I just about cry when I hear about these poor children who would like to live, but there are these kinds of obstacles. I am a type O+ and I am unsure if that would even work, but I would absolutely love to donate part of my liver to this little girl but unfortunately I do not meet any of the requirements. I am 10+ pounds over, I do smoke (but only about 3 cigarettes a day) and I drink every just about every Friday night, every other for sure. So I am very sorry for that but like I said I would do it in a HEARTBEAT!!! God bless and may he be with you holding your hand on this journey.
My deepest thoughts and prayers are with you.
Amanda Pete
We have Warrior Princesses who are strong and will beat this! Val is always in our thoughts and prayers.
Our warmest wishes,
Ana and Savannah (Warrior Princess!)
www.cotaforsavannaha.com
Hello, I was alerted to your story because about a month ago my son Will was diagnosed with Biliary Atresia. We have gone through the Kasai procedure, but so far his levels have not come down. I don't even know what to say, but I felt like I should reach out since we are going through a similar trial. Please know that I will be following your progress and praying for your beautiful daughter.
Josh - Madison, WI
I know I'm a complete stranger, but I too would do what I could to see about being a match. Feel free to email me at julz501@yahoo.com and let me know. I'm blessed with my healthy family and would like to help someone else have the fortune I've been blessed with. Please let me know. I'm 30 and in great health. My prayers and thoughts are with your family!
So sorry we did not hook up with guys yesterday. Traffic was terrible it took us over an hour to get to Bollingbrook. We will be up to see you soon. Awaiting to hear if Uncle Matt was a match - hoping and praying the transplant takes place soon. Always in my prayers.
God Bless you and your family. God will answer your prayers. We will be praying for your family. I wish I was able to be tested for compatibility, cause I would definitely do it.
Thanks to all who have responded to wanting to help my beautiful grandduaghter by donating part of your liver. Donors need to have O blood, it does not matter if it is positive or negative it just has to be O. Thanks again to all of you.
The response from people wanting to be tested as potential donors has been amazing!!! I wanted to give everyone a little information about the testing process. Health insurance companies only pay for one person to be tested at a time, so Matt Harrington is up next. The cost of testing out of pocket is around $8000.00 - $10,000.00 per person, so it is an expensive process. Those people who would like to help Valery by wishing to be placed on the potential donor list need to have O+ blood type, be in good physical condition, non - smokers, and non-drinkers. In addition to this basic criteria, there are other factors as well, such as obesity, chronic disease
Prayers for the family and that Valery receives her gift of life soon.
Mary Liver families
Sharon - How do people find out if we are compatible for donating a part of our liver? Where would one get tested? How would one go about it? I would be willing to be tested for Valery - feel free to email me at: rab2344@yahoo.com
Sharon, have you seen all the people commenting on Val's webpage and the TV station website that also want to be tested as well? This is so extremely moving! What wonderful people with big hearts that wish to help our Val!!
I have received so many emails from people wishing to be tested as possible donors, I can't list them all here. The list keeps growing!! Thank you, everyone!!! May God Bless you for your willingness to help this precious child!!
Heather and Rachel, you ladies are my heros! I thank you from the bottom of my heart and if Uncle Matt is not a match, the family may very well be looking your way! May God bless both of you for your huge hearts!!
Hello my name is Heather and if there is anything that i can do just let me know, i like to see if im a match for your little girl. I am a organ donor so if theres anything that i can do just let me know at wisconsin_002@yhaoo.com
I just saw a news story about Valery on NBC 15 Madison. I myself am the recipient of a living transplant. I received a kidney from my mother almost 9 years ago after a car accident. I would like to be tested to see if I am a possible donor for Valery. I don't know if it would be possible, as I am a transplant recipient myself. If you find out that this would be possible, and find that her uncle is not a match, please e-mail me at racheld720@yahoo.com. I would really like to help. I hope that it all works out for you.
Our prayers are with the entire Huttner family. Chris, I am still so proud of you! You could not have forseen this set back. I am praying Matt is a match, and I am trusting the Lord that He will keep Valery healthy while waiting for a donor.
prayers for the entire Valery Crew in Chicago! From Treyton and his family in Bloomington, IL. We hope to see you someday soon!
www.cotafortreytonm.com
I just wanted to let you all know that you are in my thoughts and in my prayers. May God be with you and help you through this time. I will pray that Matt is a match for Valery. God Bless you all.
Very sad day. At last minute, Val's daddy is not a perfect match after all. However, Val's Uncle Matt has just arrived in Chicago to be tested as a donor!! Hooray, Matt!!! We are praying for a match..I remember in the very beginning of this journey, you wanted to donate part of your liver to Val. Maybe this is God's hand....
Just wanted to make sure everyone knows that Vals transplant was rescheduled for the 14th. It has not been updated by her COTA webmaster. Please pray for Val, her angel daddy, and her family on the 14th. Keep Val and Daddy in your prayers for a speedy recovery! God bless you all. Thank you for letting me know about the mixup in dates.
God bless the little angel and her family.
Update: Valery was admitted to Children's Memorial Hospital today, due to the increased ascites. The transplant date has been moved back to Nov. 14th, 2007.
Our prayers are with the Huttner family.
I hope you guys had a safe trip to Chicago. I'm so excited to see Val and you guys if your still at the Kolhs house when we arrive on Dec 19th. Please keep us posted when Val gets checked out on Friday:):) We are praying for a quick recovery. God Bless Kim, Bryan and baby Bryson
I have mixed emotions about you guys leaving for Chicago today. I know Val needs to get the ascites under control long before the liver exchange, but for me (selfishly, I hate to admit) I will miss all of you an extra week or so.
Drive carefuly and I hope everyone will join me in a prayer for a safe and uneventful journey. Little guys have fun at G'ma Tina's!!
Love you all very, very much!!
Val, we are so happy that your date is set. I cannot wait to meet you. You are a brave and strong little girl. Prayers and hugs for you and your family. Your daddy is a true hero. Looks like the you have some great fundraising events going too! Good luck with those.
Sharon, I want to thank you for all that you are doing. You are an inspiration and Val and her family are very lucky to have you!! Bless you!!!!!
Thank the Lord!! November 12th will be set a day of prayer in Beloit, WI for the Huttner family. We are so excited and thankful that the date is set. I Love you all, and Chris, I am SO PROUD of you! You stepped up to the plate for your daughter and your family. I will see you all soon. Give the kids a hug and kiss for me.
God Bless you all!!
Love, Aunt Sharon
Hooray!! We now have a date and my little precious gal will have her transplant surgery on November 12. I really appreciate all the prayer and love everyone has shown Valery and her family. Keep up the good work because it seems to be helping tremendously!!
Chris and Valery are very strong and very brave and my heart is so delighted right now. Share the joy with us!
Love and kisses to both of you from Nana and Uncle Matt.
Congratulations to all of you!!!!! It is such great news and I am so happy to be able to help by selling her so sweet keychains!!!! We love you all and always in are prayers!!!!
Congratulations on your wonderful, life-changing news! I can't imagine a more precious gift than the one you are about to give your beautiful baby girl. Our son Riley has BA and underwent a successful Kasai last year. We count our blessings every day and hope for the very best for you and your family.
WOW! This is amazing to see that someone so special and little gets this awesome second chance at life. Miracles really do happen. This is great news. My family and I are still praying and we all hope that she has a swift and amazing recovery! Good luck Daddy and Baby! Much love and may god be with you all as you travel down this path of life...Brittany
I am so happy to hear the wonderful news!! It seems like we have all been waiting on that phone call for forever. I am so happy that Chris will be able to give her the gift of life! I am so excited and happy for you, little girl and your family!! You are in my prayers every day and will continue to be for the rest of this journey!
Lots of love to you and your family!!
You cannot imagine the joy, tears, thanks to God and all other types of excitement at my house last night! I know the road ahead is going to be difficult, at best, but we are so exhilarated by the Huttner news!
We are one step closer to our baby girl having a more normal life.
Thank you God, thank you CHoC, and thank you daddys' liver!!!!!!
We will continue our prayers that both of you make it safely and quickly through your surgeries and recovery. I will see you in Chicago!!!
Oh, and one more very important thing...we also are praying for Chris Sr. (Vals' grampa) who has been experiencing a medical crisis of his own lately. God be with you, Grampa Chris, as your condition improves and I really hope I will see you when we get to Chicago.
Much love to Carly, Chris, Val, and, of course, Noah and Jonah.
Love Nana and Uncle Matt
Hey, little one. You are a precious gift from God. I am praying for you, and your family. I love you very much.
Valery, you know how precious you are to all of us. We love you and are praying for you daily. May God watch over you and your family.
Love you!
Valery, you are a strong, beautiful little girl. Your a fighter with god and your parents on your side you will get through this. Bryson and I really enjoyed being at the COTA meeting and meeting the family. We will do anything to help your family. God Bless!!
Kim, Bryan and Bryson
This little girl has touched my heart. I have a nine month old little boy. I read this article and I cried. I will do anything I can to help. Please if there is anything I can do PLEASE PLEASE contact me.
cryschurch136@aol.com
Crystal
Valery,
I think about you and keep you close to my heart. You are a not only a beautiful baby but you are strong little girl. You are a Warrior Princess just like Savannah. Stay Strong sweet Val! Many, Many hugs to you and your family.
Ana and Savannah
www.cotaforsavannaha.com
Val, I love you very much and know that God will help us get you well soon. You bring such joy to all of our lives!
I love you little girl!!! You have so many people who pray for you everyday- God is going to take care of you and your wonderful family!
We are happy to be working with you!