~LABS~
Valery's labs last week were pretty good :) Her magnesium was a little low, so we had to up the dose from .8ml to 1ml. And her Prograf level unfortunately was too low, so her dose went up. She takes now 2 capsules in the morning and at night. (1.5mg/2mg). She does really well with the capsules still. We are putting them in her Gerber puff snacks and it works well! :) Her liver enzymes were good then..
This week's labs so far we know her liver enzymes are good. We know that her magnesium is back up to where it should be. Her nurse told us the magnesium does go down a lot when kids first start taking Prograf.. But we're glad its back up! And now we are just waiting to find out what the Prograf level is...and we are praying that it will be where they want it so she doesn't have to increase the dose on it.
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As for Valery news, she is now a full blown WALKER! She is walking everywhere and rarely ever crawls now. She can keep up with her big brothers a lot better now, hehe :) She can also stand up all on her own! :) Her therapy will be coming to an end soon, next month, and well its perfect timing! She's done so well.
She is also starting to eat a lot of table foods and is starting to slowly wean from breastfeeding. She is having some issues with nighttime though, and we are trying to work through it. We assume it is teething, but have talked with other liver families about these children having nightmares while taking Prograf and Prednisone. So we are suppose to believe it is teething, but are told by the team that its probably a regular baby 15 month old issue... Hopefully she can start getting more rest at nite, and well mommy & daddy for that matter.
Well that's all for updates! We have our trip coming up in 2 weeks to Wisconsin for my sister in law's wedding. Val is going to make SUCH a cute flower girl :) Plus Val is going to have a liver clinic while we are there as well.