Well our trip to Wisconsin went very great! We had a safe 16 hour trip up there, and then back :) It was such a wonderful time visiting with the family. The kids got to do a lot of fun things while we were there including going to this park called TURTLE PARK. There are paddle boats there and we took ALL of the kids on them! They all had their little life jackets on, and we went around the little lagoon once, and they loved it! Valery was SO excited ;). The kids got to go swimming at an indoor pool, which was fun! Also went to a children's museum!
They all did absolutely great in Aunt Cyndi's wedding! The boys were handsome in their suits, and Valery was a beauty in her flower girl dress! So proud of them. It was a neat thing for everyone in the family to see Valery walking down that aisle, at 8 months post transplant, doing so well,it was just proof of God's work!!
Valery's Liver Clinic at her transplant center went very well. Me, Daddy, and Val all got blood drawn for a Biliary Atresia research study the hospital is doing, and she got her regular labs drawn at the same time. Then we went to clinic and she saw her transplant nurses Joan and Ilana! Those 2 are so great, and I'm always on the phone w/ them back and forth talking about her labs and medications. They do so much for us, we love them both! And Valery saw her liver doctor, Dr. Ekong. She was sooooo extremely surprised by Valery, and how she was walking all around. She's grown so much too, and it was just amazing to her! She measured Valery's liver, and spleen, and all is well!
So 6 months after the rejection episode Valery had, they will decrease her Prograf level, so around December. She will get to take less of that med. And then around that time they will start weaning her off of the Prednisone! So Dec-Feb sometime she will only be on 2 meds :) Anyways, her transplant team wants to see her back in December for liver clinic, and ultrasound at her 1 YEAR ANNIVERSARY!!!!!!!!!!!!!!!!!!!!!!
We will be checking Valery's brother, Noah, school schedule and will plan our trip in December around that soon.
Her labs ended up being "beautiful" as her nurse says, and we just appreciate all the prayers anyone and everyone is giving us. I will post some new pictures up soon.